Our father had a bone marrow transplant, or I guess it was stem cell transplant (are they the same thing?) He was on Revlimid, but was taken off of it a while back. His kappa free light chain levels shot back up recently to 1261.
So, have people had levels this high and they've been brought back down? They'll get the test results in a couple days to see if the Pomalyst is working to bring the number down. If not, they will start him on Velcade.
How low does the number need to be for him to get another transplant?
Thank you.
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Re: High kappa FLCs - can they be brought down?
Hi Yellow Bird,
Your father almost definitely has a lot of treatment options left, and they should be able to bring his kappa light chain levels down.
When was your father diagnosed and what was his initial treatment regimen before his transplant? I'm assuming that, after his transplant, he was on Revlimid maintenance before he recently started to relapse. Is that correct?
If you give us some more information about his diagnosis and treatment, and perhaps his age and general health, we probably will be able to make some suggestions. One thing to keep in mind is that, once a myeloma patient has been treated with a specific medication, it becomes less likely (but not impossible) that they will respond well to it when they are treated with it again.
Also, is your father being seen by a myeloma specialist? That's important, particularly at this point in his treatment when fine tuning the treatment, and knowing about different treatment options and how patients may respond to them, is important.
Good luck!
Your father almost definitely has a lot of treatment options left, and they should be able to bring his kappa light chain levels down.
When was your father diagnosed and what was his initial treatment regimen before his transplant? I'm assuming that, after his transplant, he was on Revlimid maintenance before he recently started to relapse. Is that correct?
If you give us some more information about his diagnosis and treatment, and perhaps his age and general health, we probably will be able to make some suggestions. One thing to keep in mind is that, once a myeloma patient has been treated with a specific medication, it becomes less likely (but not impossible) that they will respond well to it when they are treated with it again.
Also, is your father being seen by a myeloma specialist? That's important, particularly at this point in his treatment when fine tuning the treatment, and knowing about different treatment options and how patients may respond to them, is important.
Good luck!
2 posts
• Page 1 of 1