Hi,
My name is Lori, I'm from Canton Ohio, and I am 57. I was recently diagnosed in June this year with smoldering multiple. I have Type 1 diabetes, osteoporosis with several broken ribs in the last 18 months, but no lesions and now smoldering multiple myeloma.
I see my endocrinologist every 3 months but the last 12 months or longer I have had some labs with the numbers off some. When searching the web, those numbers always said possible multiple myeloma. In June I asked my doctor to look further into this and she said its due to my diabetes but I actually told her I want to know for sure and to do some other tests. Reluctantly she did and then just referred me to an oncologist without any explanation.
With several tests and a bone marrow biopsy it was confirmed with 30% from the biopsy.
I am feeling good and surprised its not MGUS at the most!
Glad to be here!
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Shelb36 - Name: Loria
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: June 2018
- Age at diagnosis: 57
Re: Hi, smoldering since June 2018
Welcome to the forum, Lori.
One of the common questions people newly diagnosed with smoldering multiple myeloma have is whether there disease is progressing to active, or "symptomatic," multiple myeloma, which is the form of multiple myeloma that almost always is treated. (Smoldering myeloma, in contrast, typically is not treated unless there are clear signs it is rapidly progressing to symptomatic disease and will reach that stage in the near future.)
The criteria for a diagnosis of active multiple myeloma are very clearly specified, and they are summarized in this forum post:
"Criteria for a multiple myeloma diagnosis"
Your doctor is likely to start treatment of your multiple myeloma if you meet the criteria for a diagnosis of symptomatic multiple myeloma.
There also are explicit criteria for smoldering myeloma and for MGUS, a condition related to myeloma. The criteria for these diagnoses are described in these posts:
"Criteria for a smoldering multiple myeloma diagnosis"
"Criteria for an MGUS diagnosis"
All three of the above posts can be found pinned to the top of the "Do I have multiple myeloma?" section of the forum, and the post with the smoldering myeloma criteria is pinned to the top of the section of the forum with discussions related to smoldering multiple myeloma, which we recommend you go through when you have the time.
Good luck!
One of the common questions people newly diagnosed with smoldering multiple myeloma have is whether there disease is progressing to active, or "symptomatic," multiple myeloma, which is the form of multiple myeloma that almost always is treated. (Smoldering myeloma, in contrast, typically is not treated unless there are clear signs it is rapidly progressing to symptomatic disease and will reach that stage in the near future.)
The criteria for a diagnosis of active multiple myeloma are very clearly specified, and they are summarized in this forum post:
"Criteria for a multiple myeloma diagnosis"
Your doctor is likely to start treatment of your multiple myeloma if you meet the criteria for a diagnosis of symptomatic multiple myeloma.
There also are explicit criteria for smoldering myeloma and for MGUS, a condition related to myeloma. The criteria for these diagnoses are described in these posts:
"Criteria for a smoldering multiple myeloma diagnosis"
"Criteria for an MGUS diagnosis"
All three of the above posts can be found pinned to the top of the "Do I have multiple myeloma?" section of the forum, and the post with the smoldering myeloma criteria is pinned to the top of the section of the forum with discussions related to smoldering multiple myeloma, which we recommend you go through when you have the time.
Good luck!
2 posts
• Page 1 of 1
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