Hello Maro!
Thank you for asking about my health. I am doing well. In the fall, I had much suffering and all sorts of problems, including amyloidosis in my stomach, which made me stop eating all together for many days. The Revlimid/dex combination soon brought my values back, and within a few months I gained both weight and strength. I am in remission again and my HG is almost normal, at 11.9. I lead a normal life, except for the psychological side. The relapse after just over two years proved that, in spite of exercising, keeping busy and try to be my old self, the disease strikes. Not nice.
The longest lasting problem has been neuropathy in my legs, but even that is almost gone, so I resumed practicing the drum and taking drum lessons. I could not use the pedal for a long time. I swim regularly. And I hope I will have the longest second remission from myeloma humanity has ever seen!
Forums
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Annamaria - Name: Annamaria
- Who do you know with myeloma?: I am a patient
- When were you/they diagnosed?: April 2012
- Age at diagnosis: 58
Re: Here you are, relapse!
Hello Annamaria,
I loved reading your posts, your positivity is inspiring!
I especially enjoyed reading your last post, which indicated you are doing well and living as normal as one can with multiple myeloma!
I have recently joined the forum on behalf of my mom. She recently relapsed too (April) after almost 2 years in remission post steam cell transplant.
We are still in limbo. She initially restarted treatment with Velcade and dex (what she had before her stem cell transplant). However, she has now begun treatment with Kyprolis. Her oncologist would like us to wait about a month to see how effective it is. I am trusting it works!
The biggest struggle for my mom and my family is wrapping our heads around the fact that the myeloma is back. It is quite interesting how quickly one can forget about treatments and everything once your life seems to be "back to normal". While we pray that everything gets back under control we also need to figure out how to live with the relapse!
Annamaria, I wish you well in your myeloma journey, and I will make sure my mom reads your posts
Una
I loved reading your posts, your positivity is inspiring!
I especially enjoyed reading your last post, which indicated you are doing well and living as normal as one can with multiple myeloma!
I have recently joined the forum on behalf of my mom. She recently relapsed too (April) after almost 2 years in remission post steam cell transplant.
We are still in limbo. She initially restarted treatment with Velcade and dex (what she had before her stem cell transplant). However, she has now begun treatment with Kyprolis. Her oncologist would like us to wait about a month to see how effective it is. I am trusting it works!
The biggest struggle for my mom and my family is wrapping our heads around the fact that the myeloma is back. It is quite interesting how quickly one can forget about treatments and everything once your life seems to be "back to normal". While we pray that everything gets back under control we also need to figure out how to live with the relapse!
Annamaria, I wish you well in your myeloma journey, and I will make sure my mom reads your posts
Una
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marijasgirl - Name: Una
- Who do you know with myeloma?: Mother
- When were you/they diagnosed?: October 23,2013
- Age at diagnosis: 53
Re: Here you are, relapse!
Annamarie - Loved hearing that you are playing drums and enjoying life again! I, too, hope that you have the longest remission in history!
I use Ambien (zolpidem) for sleep problems. I have had insomnia for over 10 years. I get Ambien 10 mg, which I cut in half. I only use them when I have trouble, and have not seen any problem with usage over these many years. Sometimes I don't need them for months at a time and no problem with my body developing a 'need' for them. Also, they don't leave you groggy, I wake up feeling refreshed.
I use Ambien (zolpidem) for sleep problems. I have had insomnia for over 10 years. I get Ambien 10 mg, which I cut in half. I only use them when I have trouble, and have not seen any problem with usage over these many years. Sometimes I don't need them for months at a time and no problem with my body developing a 'need' for them. Also, they don't leave you groggy, I wake up feeling refreshed.
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