[sue in ohio]

Re: Hello! Just found this forum

by sue in ohio on Sun Dec 21, 2014 6:40 pm

I thank you all for your input, but I am positive I will not do the stem cell transplant, so won't even consider that one. I could not take the brutality of that I am sure. In fact, I read an article on this website from 2 different myeloma doctors who disagree on stem cell transplants as a first line of treatment.

I have the best oncologist in the world who is a guardian angel to both my husband and myself. He has won many national awards for his work and believe me he treats many myeloma patients and keeps up on all of the latest research. He is the most caring doctor you will ever meet. My husband was diagnosed with stage 3 non-Hodgkin's lymphoma right before he turned 60 11 years ago and started with our dear doctor. After aggressive treatment, he went into remission for 2 1/2 years then, when it came back, it was a slow growing form and it has been 6 1/2 years since he had to have treatments. This doctor has saved his life a few times over the years and we both have complete trust in him.

I guess I am just trying to decide which would be the best option along with my Velcade and prednisone - the Cytoxan or Revlimid. Is anyone aware which one has the least amount of side effects with the best results? It just seems to me that most people who are treated for cancer with chemo end up down the road with another kind of cancer caused by the first chemo, and that the treatments end up killing more people than the cancers!

I also believe in natural treatments and the herbs I take I feel is the reason I have had no side effects from the Velcade. I have a wonderful naturopath who researches everything he puts me on to make sure he does not give me anything that will interfere with my treatments. I will email him to see what he may want to tweak as far as my supplements.

I just wish I could go to bed tonight and wake up in the arms of Jesus tomorrow morning. How wonderful that would be!

sue in ohio

[sue in ohio]

Re: Hello! Just found this forum

by sue in ohio on Fri Dec 26, 2014 9:17 pm

I have decided against both Cytoxan and Revlimid for the time being. Instead, I am going to try low dose naltrexone, which is FDA approved for chronic pain. My pain doctor will prescribe it for me when I see him. In the low dose of 4.5 mg, it is used to treat fibromyalgia, which I have. There is a lot of research I have read out there about some doctors using it to treat cancer and having success with helping people go into remission. So I am going to try it for a couple of months before even considering anything else.

I will continue to take the Velcade and prednisone, but am not adding any more chemo at this time. My naturopath is also going to sit down with me and go over my current protocol and lab work and possibly make some changes. This is what I am comfortable with for now, and I am feeling good about my decision.

sue in ohio