Hello All
I am newly diagnosed with smoldering myeloma. I have been reading all the advice on this site and have learnt so much from the members.
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5 posts
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KarenR - Name: Karen
- Who do you know with myeloma?: Self. My mom had it
- When were you/they diagnosed?: Dec 2018
- Age at diagnosis: 57
Re: Hello From Brisbane Australia
Welcome to the forum, Karen.
One of the common questions people newly diagnosed with smoldering multiple myeloma have is whether there disease is progressing to active, or "symptomatic," multiple myeloma, which is the form of multiple myeloma that almost always is treated. (Smoldering myeloma, in contrast, typically is not treated unless there are clear signs it is rapidly progressing to symptomatic disease and will reach that stage in the near future.)
The criteria for a diagnosis of active multiple myeloma are very clearly specified, and they are summarized in this forum post:
"Criteria for a multiple myeloma diagnosis"
Your doctor is likely to start treatment of your multiple myeloma if you meet the criteria for a diagnosis of symptomatic multiple myeloma.
There also are explicit criteria for smoldering myeloma and for MGUS, a condition related to myeloma. The criteria for these diagnoses are described in these posts:
"Criteria for a smoldering multiple myeloma diagnosis"
"Criteria for an MGUS diagnosis"
All three of the above posts can be found pinned to the top of the "Do I have multiple myeloma?" section of the forum, and the post with the smoldering myeloma criteria is pinned to the top of the section of the forum with discussions related to smoldering multiple myeloma, which we recommend you go through when you have the time.
Again, welcome, and best of luck to you.
One of the common questions people newly diagnosed with smoldering multiple myeloma have is whether there disease is progressing to active, or "symptomatic," multiple myeloma, which is the form of multiple myeloma that almost always is treated. (Smoldering myeloma, in contrast, typically is not treated unless there are clear signs it is rapidly progressing to symptomatic disease and will reach that stage in the near future.)
The criteria for a diagnosis of active multiple myeloma are very clearly specified, and they are summarized in this forum post:
"Criteria for a multiple myeloma diagnosis"
Your doctor is likely to start treatment of your multiple myeloma if you meet the criteria for a diagnosis of symptomatic multiple myeloma.
There also are explicit criteria for smoldering myeloma and for MGUS, a condition related to myeloma. The criteria for these diagnoses are described in these posts:
"Criteria for a smoldering multiple myeloma diagnosis"
"Criteria for an MGUS diagnosis"
All three of the above posts can be found pinned to the top of the "Do I have multiple myeloma?" section of the forum, and the post with the smoldering myeloma criteria is pinned to the top of the section of the forum with discussions related to smoldering multiple myeloma, which we recommend you go through when you have the time.
Again, welcome, and best of luck to you.
Re: Hello From Brisbane Australia
Thanks, I have been reading up and have a handle on where I get in the group. I hope I smoulder for a very very very long time.
I am IgG kappa
25 g/l (2.5 g/dL) M-protein
Free light chain ratio of 7.
25% plasma cells on bone marrow biopsy.
Immunoparesis.
Pneumonia vaccine and flu vaccine.
I am feeling well. Don't get ill.
No symptoms.
Monthly blood checks.
The journey has begun.
I am IgG kappa
25 g/l (2.5 g/dL) M-protein
Free light chain ratio of 7.
25% plasma cells on bone marrow biopsy.
Immunoparesis.
Pneumonia vaccine and flu vaccine.
I am feeling well. Don't get ill.
No symptoms.
Monthly blood checks.
The journey has begun.
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KarenR - Name: Karen
- Who do you know with myeloma?: Self. My mom had it
- When were you/they diagnosed?: Dec 2018
- Age at diagnosis: 57
Re: Hello From Brisbane Australia
Welcome Karen 
Hope you continue to just smoulder
Hope you continue to just smoulder
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Colm - Name: Colm
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: smoldering April 2016
- Age at diagnosis: 56
Re: Hello From Brisbane Australia
Thanks. Good to have so much support and information.
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KarenR - Name: Karen
- Who do you know with myeloma?: Self. My mom had it
- When were you/they diagnosed?: Dec 2018
- Age at diagnosis: 57
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