[Little Monkey]

Re: Hearing loss from Velcade, thalidomide & dexamethasone?

by Little Monkey on Thu Feb 25, 2016 8:36 am

Ya, looks like my dad has a little bit of hearing loss since starting Velcade. He will report it to his haematologist when he sees her next week.

[MMFeb16,15]

Re: Hearing loss from Velcade, thalidomide & dexamethasone?

by MMFeb16,15 on Fri Feb 26, 2016 5:33 pm

Approximately 35 years ago I lost my hearing completely after a flight from London to Chicago. My main physician kept treating me with an antihistamine. My blood protein was high. To cut the story short, my then oncologist felt I have blood cancer. I had MRI (new thing in those days), bone marrow (twenty percent I remember) and visit to neurologist for numbness on left side head to toe.

Finally I was sent to an ENT who found that I am a G6PD person - an X-chromosome inherited deficiency. He said what I have is autoimmune ear disease. I was treated with Cytoxan and prednisone and recovered my hearing 60 percent (right ear) and 40 percent (left ear). He men­tioned If I would have come immediately I could have recovered hundred percent.

Since then I am using hearing aid. My hearing is same as after I recovered.

These days it is very difficult to find an expert in G6PD, especially for adult. My specialist said not to worry about high protein or high blood pressure in my kind of person. However, other experts do not necessarily agree.