Well everyone,
I was diagnosed as plasmacytoma of the femur, which happened after it broke, or multiple myleloma resulting in a plasmacytoma or lesion.
I have had most of the tests, and will soon have a full skeletal survey to see if more lesions have shown up. I have radiation for 5 weeks after surgery on the femur to pin it back together, but when I went in for my first blood tests and urine collection after radiation, my light chains had jumped to over 700. So now I may be heading back to Vanderbilt for more evaluation and hip biopsies.
I suppose my first question is: Can radiation over a 5 week period cause your light chains to elevate?
The second question is if I start on chemo pretty soon (as I think they are putting of stem cell transplant for the moment.) what may I expect from the different chemo medications? I am receiving Zometa on a monthly basis and have had two treatments.
I would appreciate any responses. I am a 57 year old male.
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Re: Have plasmacytoma - may have multiple myeloma
Hi,
I was diagnoses in June 2013. At the time I had major damage to my left humorous. I could not move the arm at all. I also had plasmacytoma on several vertebrae and ribs. I had radiation, which, other than the excruciating pain involved with moving onto the platform with fractured vertebrae, I tolerated fairly well. My fractured vertebrae happened in three sets, each about three weeks apart. Three hospital stays and two kyphoplasty procedures.
After the radiation, I went on Revlimid, Velcade, and Dexamethasone. I tolerated them well. At forth cycle, I was very tired and had no energy, but my blood numbers were good, or at least borderline. I started out with an m-spike of 7.7 g/dL and now I am at 1.6 g/dL. Bone marrow was 80% plasma cells and now is 30-40%.
I am off chemo now, waiting on an autologous stem cell transplant. Being off chemo is great. Waiting for harvest is not. I just have a weird feeling about being partially treated and m-spike not below 1. But, I expect the higher dose chemo during the transplant will help.
I was mostly constipated during the RevValDex chemo, until the last few weeks, when it switched to the opposite. Neither is fun. There were a few weeks where I thought I had my body dialed-in.
I am also receiving Zometa. The bad thing is that when I was diagnosed, I was right in the middle of having two tooth implants to correct some problems due to old injuries. Now I can't finish them for fear of a certain disease whose name escapes me right now.
The radiation did not effect my light chains. My radiation took three weeks or so. Once back on chemo, they went down.
I wish you the best. Hang in there. Email if you need to chat.
Scott
Age 46
I was diagnoses in June 2013. At the time I had major damage to my left humorous. I could not move the arm at all. I also had plasmacytoma on several vertebrae and ribs. I had radiation, which, other than the excruciating pain involved with moving onto the platform with fractured vertebrae, I tolerated fairly well. My fractured vertebrae happened in three sets, each about three weeks apart. Three hospital stays and two kyphoplasty procedures.
After the radiation, I went on Revlimid, Velcade, and Dexamethasone. I tolerated them well. At forth cycle, I was very tired and had no energy, but my blood numbers were good, or at least borderline. I started out with an m-spike of 7.7 g/dL and now I am at 1.6 g/dL. Bone marrow was 80% plasma cells and now is 30-40%.
I am off chemo now, waiting on an autologous stem cell transplant. Being off chemo is great. Waiting for harvest is not. I just have a weird feeling about being partially treated and m-spike not below 1. But, I expect the higher dose chemo during the transplant will help.
I was mostly constipated during the RevValDex chemo, until the last few weeks, when it switched to the opposite. Neither is fun. There were a few weeks where I thought I had my body dialed-in.
I am also receiving Zometa. The bad thing is that when I was diagnosed, I was right in the middle of having two tooth implants to correct some problems due to old injuries. Now I can't finish them for fear of a certain disease whose name escapes me right now.
The radiation did not effect my light chains. My radiation took three weeks or so. Once back on chemo, they went down.
I wish you the best. Hang in there. Email if you need to chat.
Scott
Age 46
-
Spalmer - Name: Scott Palmer
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: 6/2013
- Age at diagnosis: 46
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