I am so glad that I was able to find this site! I was diagnosed with MGUS in 2012 at the ripe old age of 27! I have an extremely long medical history but the MGUS was found when I had bone loss from menopause. Went to a osteoporosis specialist who was on his game and tested for other reasons for bone loss rather than just menopause and I came back with a positive Bence Jones Protein. Sad part is my grandmother had multiple myeloma and passed away from a secondary infection so I know all too well the path I could possibly be headed down. Not to mention I work as a nurse and see this disease on at least a monthly basis. Even being an RN I have a hard time wrapping my head around the MGUS and what all of the lab results mean so for all of you out there that are helping with interpretations THANK YOU! It is so confusing even for a medical professional!
I have been seeing an ONC every 6 months and just had my last appointment. I tell you when that 6 month visit comes around I almost dread it. This demon gets on top of my shoulder again until I get the lab results. This time has been especially nerve racking. I have not really been feeling great, had recent unintentional weight loss of 15#'s and have noticed low grade temps at night. I don't know maybe I am just paranoid
which could very well be. I hope I get my results soon and maybe coming back for some interpretation! Regards
