[Karen]

Hair loss with CyBorD?

by Karen on Sun Feb 09, 2014 8:32 pm

Hi everyone,

I've been on the Cytoxan/Velcade/Dexamethasone (CyBorD is I believe the right abbreviation?) for a couple of months now, getting 550 mg of Cytoxan, 2.5 mg of Velcade and 40 mg of decadron once a week.

The one side effect from this regimen that I've been experiencing, which was a bit of a surprise, is pretty significant hair thinning. I was wondering if anyone else has experienced this? I had a stem cell harvest back in early 2011 and lost about 3/4 of my hair then from the Cytoxan, but my doctor told me that this current treatment was a much lower dose and shouldn't cause "much" hair loss, if any. Hmm ... I am seeing lots and lots of lost strands and I have a sort of continuous feeling of "tingling" in my scalp.

I know the important thing is to keep the myeloma at bay and I am grateful that this treatment is working very well, but I was not really prepared for this much thinning and am wondering how much worse it might get. Has anyone else had a similar experience and did the thinning just get worse and worse or did it stabilize at some point?

Thanks!

Karen

[ClassicKate]

Re: Hair loss with CyBorD?

by ClassicKate on Wed Feb 12, 2014 3:21 pm

I am on CCd, which includes carfilzomib, dex and Cytoxan. I have had one cycle 3 weeks on and one off. I start cycle two next week. The Cytoxan has been once a week at 500mg. I am seeing a little more hair fall out at this point, but it is early in the treatment. I also lost most of my hair when I harvested my stem cells (again HD Cytoxan). I have scalp issues (tight, tingling) with or without Cytoxan, so I cannot help you with that side effect.

[dianaiad]

Re: Hair loss with CyBorD?

by dianaiad on Thu Feb 13, 2014 10:05 am

I had significant hair thinning with CyBorDe, and my hair got very dry and brittle. It was almost a relief to lose the rest of it at transplant time!

It's growing back like gangbusters now, though; thick, healthy and...curly! (I actually had to comb it this morning; whoot!)