Hi Cassy,
Thank you for sharing your experience, and I hope that your new choice of treatment will work wonderfully. You are so right in that no one should ever lose hope.
Best wishes to you!
Alex
Forums
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dnalex - Name: Alex N.
- Who do you know with myeloma?: mother
- When were you/they diagnosed?: 2007
- Age at diagnosis: 56
Re: Gonzalez therapy / protocol for myeloma - experiences
Hi everybody!
Thank you for your wishes Alex!
I have found a link to someone who had myeloma and was treated -- unfortunately unsuccessfully -- by Dr. Gonzalez. Here it is:
http://myeloma.org/ArticlePage.action?articleId=585
I would love for Dean and Dee to write to balance my experience, if they are doing well (which I hope with all my heart they are).
I had an appointment yesterday with my oncologist at Sloan Kettering and I started cycle 2 of Velcade and dexamethasone. Also, I found out the total extent of the damage as per a full body MRI. From only a 2.5 cm marrow cm on my sacrum, I have two in that area now. That primary one is 4 cm. My vertebrae is riddled with them and plasma infiltrations. I also have them in my pelvis and my ribs.
When I read the report I got a bit angry. So much for Dr. Gonzalez hair analysis proclaiming my cancer was melting away!
My oncologist at Sloan Kettering gave me a lesson in professionalism by refraining to criticize Dr. Gonzalez. She told me to focus on the future and what we were doing now -- that Dr. Gonzalez was water under the bridge. She has never said a single word against him, not even an eye roll! And she never told me off for choosing him.
I have been a very difficult patient and she has responded by being wonderful. I wrote her a letter of apology because I was really quite bad not to answer her worried calls last September, and she simply said “this is not about me, but about you and getting you better”. Not only is she very intelligent, but really a very nice lady. I am very lucky.
I had a little bit of trouble with my first cycle of Velcade and dex so I only had three Velcade injections and 16 mg of dex (because of a bad reaction to the dex), so the cycle was incomplete. But still my IgG protein levels drop by 25% and my M spike by almost 1 point. I was in the 5000, now in the 4000. Plus my back pain is much improved.
Finally, after so many months, a little bit of REAL and TANGIBLE good news.
Thank you for your wishes Alex!
I have found a link to someone who had myeloma and was treated -- unfortunately unsuccessfully -- by Dr. Gonzalez. Here it is:
http://myeloma.org/ArticlePage.action?articleId=585
I would love for Dean and Dee to write to balance my experience, if they are doing well (which I hope with all my heart they are).
I had an appointment yesterday with my oncologist at Sloan Kettering and I started cycle 2 of Velcade and dexamethasone. Also, I found out the total extent of the damage as per a full body MRI. From only a 2.5 cm marrow cm on my sacrum, I have two in that area now. That primary one is 4 cm. My vertebrae is riddled with them and plasma infiltrations. I also have them in my pelvis and my ribs.
When I read the report I got a bit angry. So much for Dr. Gonzalez hair analysis proclaiming my cancer was melting away!
My oncologist at Sloan Kettering gave me a lesson in professionalism by refraining to criticize Dr. Gonzalez. She told me to focus on the future and what we were doing now -- that Dr. Gonzalez was water under the bridge. She has never said a single word against him, not even an eye roll! And she never told me off for choosing him.
I have been a very difficult patient and she has responded by being wonderful. I wrote her a letter of apology because I was really quite bad not to answer her worried calls last September, and she simply said “this is not about me, but about you and getting you better”. Not only is she very intelligent, but really a very nice lady. I am very lucky.
I had a little bit of trouble with my first cycle of Velcade and dex so I only had three Velcade injections and 16 mg of dex (because of a bad reaction to the dex), so the cycle was incomplete. But still my IgG protein levels drop by 25% and my M spike by almost 1 point. I was in the 5000, now in the 4000. Plus my back pain is much improved.
Finally, after so many months, a little bit of REAL and TANGIBLE good news.
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Cassy66 - Who do you know with myeloma?: me
- When were you/they diagnosed?: August 2012
- Age at diagnosis: 55
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