Hello,
I am discouraged.
I am followed for MGUS (IgG kappa) or smoldering myeloma (doctors do not know), and I have no treatment.
Since 3 months I took food supplements given by a doctor to try to stop my peak rising.
I took iodine, vitamin B12 and D3, zinc, selenium, magnesium, things for the liver and the intestines (my transaminases are nice, but the gamma Gt are still too high). Also, I have homeopathy (dopamine, serotonin, GABA, etc.)
Meanwhile, I had parotitis (inflammation of the salivary glands) for 15 days, and went to the hospital. I had a scanner (with iodine injection), antibiotics on a drip, and all is well now.
Except ...
There are 3 months, my gamma M-spike was 13.6 g/L (1.36 g/dL). Today it is 15 g (1.5 g/dL).
My beta 2 globulin was 2.7, and it is 3.
The A / G ratio was 1.46, it is now 1.26 (I think that's fine, but I am not sure).
Total proteins were 83 g/L, now it is 80 g/L, and the rest is relatively stable (not yet anemic, but the figure below).
In your opinion, did my parotitis influence my gamma M-spike? Or my dietary supplements, have they had a bad part?
Thank you
Forums
5 posts
• Page 1 of 1
Re: Gamma M-spike increased despite dietary supplements
Hi Jacqueline,
A change in your M-spike from 1.36 g/dL to 1.5 g/dL is not a big change. Your M-spike will fluctuate over time and can even vary depending on the time of day you have your test done and which lab is processing the test. So, I wouldn't suggest trying to tie that minor increase to something like an infection, nor would I be discouraged by this change.
I might suggest going back and looking at and graphing your M-spike since diagnosis to get an idea of the longer term trend.
I am smoldering and you can see how my M-spike and involved free light chain and involved immunoglobulin have fluctuated since my diagnosis by looking at my graphs in this thread.
https://myelomabeacon.org/forum/fenofibrate-tricor-and-multiple-myeloma-t2690-20.html
I seem to recall that your doctor prescribed most of these supplements, right? If your oncologist / hematologist is not aware that you are taking a particular supplement (or prescription drug), you should always first clear it with him/her.
Hope this helps a bit.
A change in your M-spike from 1.36 g/dL to 1.5 g/dL is not a big change. Your M-spike will fluctuate over time and can even vary depending on the time of day you have your test done and which lab is processing the test. So, I wouldn't suggest trying to tie that minor increase to something like an infection, nor would I be discouraged by this change.
I might suggest going back and looking at and graphing your M-spike since diagnosis to get an idea of the longer term trend.
I am smoldering and you can see how my M-spike and involved free light chain and involved immunoglobulin have fluctuated since my diagnosis by looking at my graphs in this thread.
https://myelomabeacon.org/forum/fenofibrate-tricor-and-multiple-myeloma-t2690-20.html
I seem to recall that your doctor prescribed most of these supplements, right? If your oncologist / hematologist is not aware that you are taking a particular supplement (or prescription drug), you should always first clear it with him/her.
Hope this helps a bit.
-
Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: Gamma M-spike increased despite dietary supplements
Multibilly, thank you.
I see your M-spike varied considerably. But mine only rises slowly but surely (I also made a curve).
It seems to me that this disease is really complex.
This is why I take a lot of supplements (prescribed by a doctor, but not by the hematologist, who remains on the basic analyses, and never wanted to see my test results made outside hospital).
I have to see the two doctors soon, and I hope to be informed about my case.
Do not know, it's hell.
If I do not have a clear answer, and if the disease progresses (plus I have the t (4; 14)), I decided to try bromelain plus other supplements.
Again thank you for your reassuring presence on the forum.
I see your M-spike varied considerably. But mine only rises slowly but surely (I also made a curve).
It seems to me that this disease is really complex.
This is why I take a lot of supplements (prescribed by a doctor, but not by the hematologist, who remains on the basic analyses, and never wanted to see my test results made outside hospital).
I have to see the two doctors soon, and I hope to be informed about my case.
Do not know, it's hell.
If I do not have a clear answer, and if the disease progresses (plus I have the t (4; 14)), I decided to try bromelain plus other supplements.
Again thank you for your reassuring presence on the forum.
-
Jacqueline - Name: Jacqueline
- When were you/they diagnosed?: november 2010
- Age at diagnosis: 53
Re: Gamma M-spike increased despite dietary supplements
I saw today a new hematologist at the hospital, a teacher.
At the sight of my analysis, he said it was good, it was reassuring. The M-spike up, that is not a concern for now.
Then he proceeded to tell me what it is that gammopathy (read and re-read things on the Internet), and I could not interrupt to ask him the questions I had prepared.
He said 2% of the adult population has this anomaly, and the vast majority will never be sick.
He said I could end my life without developing myeloma.
Then he gave me a prescription for an MRI of the spine and lower back, plus a densitometry. And the order, he wrote "stage I".
I pointed out to him that I thought was still in MGUS, but I did not understand his answer.
This doctor says things in such a manner it is reassuring without being.
Here I am with doubts: If a professor of hematology told me first that "all is well" (in fact, he recognizes that there is abnormality, but that is all), then if I am classified as stage I, I am confused.
As for supplements, I have spoken, but he has not scored. He just asked what I was taking drugs (just a hypotensive).
By cons, yes, vitamin D that I take can explain calcium levels too high.
This consultation should have let me reassure me too many doubts.
At the sight of my analysis, he said it was good, it was reassuring. The M-spike up, that is not a concern for now.
Then he proceeded to tell me what it is that gammopathy (read and re-read things on the Internet), and I could not interrupt to ask him the questions I had prepared.
He said 2% of the adult population has this anomaly, and the vast majority will never be sick.
He said I could end my life without developing myeloma.
Then he gave me a prescription for an MRI of the spine and lower back, plus a densitometry. And the order, he wrote "stage I".
I pointed out to him that I thought was still in MGUS, but I did not understand his answer.
This doctor says things in such a manner it is reassuring without being.
Here I am with doubts: If a professor of hematology told me first that "all is well" (in fact, he recognizes that there is abnormality, but that is all), then if I am classified as stage I, I am confused.
As for supplements, I have spoken, but he has not scored. He just asked what I was taking drugs (just a hypotensive).
By cons, yes, vitamin D that I take can explain calcium levels too high.
This consultation should have let me reassure me too many doubts.
-
Jacqueline - Name: Jacqueline
- When were you/they diagnosed?: november 2010
- Age at diagnosis: 53
Re: Gamma M-spike increased despite dietary supplements
I had my complete test results, and for the first time in over 4 years, I see that the M spike, which was still rising slowly but inexorably, descended to the level it had been in July 2014.
On January 7, 2015 there was 15.2 g/L (1.52 g/dl) and it is 13.7 g/L (1.37 g/dl) today.
This after months of dietary supplements? Or other food? OK. It's a very little difference, I agree.
I do not know if this is because the analysis fell in a period when the peak fluctuates (possible), or if it's the beginning of a stabilization of the problem (I hope!), but I feel encouraged ...
It's crazy how a little hope can help to breathe and open the spirit over the future.
On January 7, 2015 there was 15.2 g/L (1.52 g/dl) and it is 13.7 g/L (1.37 g/dl) today.
This after months of dietary supplements? Or other food? OK. It's a very little difference, I agree.
I do not know if this is because the analysis fell in a period when the peak fluctuates (possible), or if it's the beginning of a stabilization of the problem (I hope!), but I feel encouraged ...
It's crazy how a little hope can help to breathe and open the spirit over the future.
-
Jacqueline - Name: Jacqueline
- When were you/they diagnosed?: november 2010
- Age at diagnosis: 53
5 posts
• Page 1 of 1