The Myeloma Beacon

Independent, up-to-date news and information for the multiple myeloma community.
Home page Deutsche Artikel Artículos Españoles

Forums

Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: Food tastes awful after stem cell transplant

by Karen on Wed Jan 18, 2017 10:53 am

I hope your taste buds are getting back to normal now!

I went through the same thing. It does come back. I think for me it was 2-3 months. I just had to experiment and see what I could tolerate. For water, for some reason seltzer water was OK, but plain water did taste weird. I also developed a sudden craving for regular Coke, which I hadn't drunk in decades. In general, sweet things seemed to taste better than non-sweet, although I also found that plain chocolate tasted odd. But things like pudding and applesauce were OK. I also found I could eat some fried things like frozen egg rolls and shrimp.

Not the healthiest choices, but since I wasn't eating very much, I figured whatever I could get down would be better than nothing.

Hang in there!

Karen

Karen
Name: Karen
When were you/they diagnosed?: December 2010
Age at diagnosis: 51

Re: Food tastes awful after stem cell transplant

by elizabethmwm on Fri Jan 20, 2017 12:43 am

It was about 5 months for me before I started enjoying all the foods I used to enjoy. I had lost 40 pounds and was hoping to keep some of it off; unfortunately, it found me after my taste buds and appetite returned. In the meantime, I had to eat foods that had some "liquid" with them – cereal with milk, soup, spaghetti with sauce, etc. Things like bread stuck to my teeth and mouth.

You'll get there, and it's so much fun to taste again!

elizabethmwm
Name: Elizabeth M
Who do you know with myeloma?: me
When were you/they diagnosed?: 8/20/2012
Age at diagnosis: 57

Re: Food tastes awful after stem cell transplant

by Memakes4 on Tue Jan 24, 2017 6:25 pm

Thanks again for the replies. I am on Day 74 and I am happy to say that most food tastes normal now. I have to stay away from anything acidic, including tomatoes. No pizza for me yet. I can't imagine how some of you went 6 months or more. I would be crazy. I love to cook and I love to eat. I keep telling myself that I'll look back on all of this someday and it won't seem so bad.

Memakes4
Name: Nancy
Who do you know with myeloma?: Myself
When were you/they diagnosed?: June 2016
Age at diagnosis: 69

Previous

Return to Treatments & Side Effects