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First round of treatment result for Mom!

by veganmartin on Sun Mar 24, 2013 9:00 am

Hello all. Originally had this on the tread I started when Mom was first diagnosed ("Mom just diagnosed, not doing well" or something to that effect), but since she IS doing well now, thought it was time to start a new thread. On Thursday (3/21) we went into see my mother's oncologist @ Roswell Park Cancer Institute (first round of treatment is over). They were thrilled with her response. We all burst out into tears when they told us. They are thinking ASCT in 4-6 months. Here are her levels:
IGA: Baseline: 2290, Now: 1000
IGA Lambda: Baseline: 2440, Now: 475
M-Spike: Baseline: 1.61, Now: 0.76
:D
I've been holding off on setting a date for my wedding and we discussed it briefly at the appointment. I want to hold it late summer, before her ASCT b/c if we wait until after, it could possibly be winter (and, if she has complications, it will be even longer). My biggest fear is that she becomes sick after the transplant and wouldn't be able to be at the wedding. So, a question I have is when she is at remission level/near remission levels and they harvest her stem cells and freeze them, can she wait a couple months before the transplant? That way, if she continues having excellent response to the treatments and she's ready by say, July, can she continue treatment (to keep the multiple myeloma levels down) and wait until say, September to have the transplant, or is it best to as soon as someone hits that remission level, to immediately move to transplant? It seems like from reading other's posts, it looks like many times the transplant teams have the patient stop the treatments a couple months prior to ASCT. My mom wants to have the wedding after her ASCT, but that would be a year from now (she was thinking late fall, but I need to convince her there is a lot of time after the transplant that she'll need to just focus on getting well). I'm getting close to 40 years old and want to start a family, waiting until next year isn't a smart option for us.

Thank you all!

veganmartin
Name: Kristen
Who do you know with myeloma?: Mother
When were you/they diagnosed?: September 2012
Age at diagnosis: 67

Re: First round of treatment result for Mom!

by terryl1 on Sun Mar 24, 2013 9:21 am

I don't know if this is an option for you. My wife and I had a civil marriage ceremony one year before our church wedding in Barcelona, Spain where she is from. This was nice because we were able to have have friends and family in the US attend who couldn't make it to Spain for the big one.

terryl1
Name: Terry
Who do you know with myeloma?: self
When were you/they diagnosed?: August 10, 2011
Age at diagnosis: 49


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