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Do you have fibromyalgia and multiple myeloma?

by hopeful27 on Mon Apr 13, 2015 4:15 pm

Has anyone been diagnosed with fibromyalgia and multiple myeloma? My mom was told she had fibromyalgia for 3+ years before they finally did bloodwork or urine work. It makes me so angry ...

hopeful27

Re: Do you have fibromyalgia and multiple myeloma?

by Toni on Mon Apr 13, 2015 5:24 pm

I do not have multiple myeloma, I have MGUS (monoclonal gam­mop­athy of un­de­termined sig­nif­i­cance). I was diagnosed with fibro­my­algia at least 20 years ago. I was tested for a para­protein one year ago.

In the past several years, I've developed a lot more symptoms that did not seem consistent with fibromyalgia, or which seemed different than what I had experienced in the past, so I saw my doctor frequently to determine the cause.

Last year when I developed peripheral neuropathy and significant pain, significant enough to make it difficult to walk, he referred me to a neurologist, who found the paraprotein.

I cannot speak for other doctors though. I believe now that, if you have neuropathy, testing is frequently done to see if an M-spike exists. I do not know if rheumatologists test for it when determining if there is a paraprotein though. I have seen rheumatologists many times, but there was never a mention of a monoclonal gammopathy.

Do you mean your mother never had any testing done, whatsoever? I know fibromyalgia is diag­nosed symptomatically, but every rheumatologist or internist I've seen has run blood tests to rule out any other cause. What type of physician did she see?

Toni
Name: Toni
Who do you know with myeloma?: self - MGUS
When were you/they diagnosed?: April 2014
Age at diagnosis: 51


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