Have any myeloma specialists, facilities, or researchers considered implementing a National Multiple Myeloma Registry, similar to the National Amyotrophic Lateral Sclerosis (ALS) Registry?
While the National ALS Registry is congressionally mandated, to help determine who gets ALS and its causes, could such a program also benefit the myeloma community?
For MGUS, SMM, and multiple myeloma, an official patient database might help scientists observe trends and environmental factors among individual patients and populations, categorize anecdotal findings, learn more about these diseases and assist in finding an eventual cure.
Just a thought ...
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