[S Kirby]

Re: Experience with Revlimid maintenance

by S Kirby on Mon Dec 08, 2014 10:27 pm

I have been on maintenance Revlimid (10 mg, 21 days out of 28) since September of 2011. I went through chemo of Velcade, Revlimid and Dex for four months and then a stem cell transplant in July, 2011. Although I have had some side effects, after reading about others, they have been few and bearable. What is the longest anyone has been using Revlimid maintenance?

[fetalsono]

Re: Experience with Revlimid maintenance

by fetalsono on Thu Dec 11, 2014 1:58 am

See how your light chains and M-spike are responding. In my case, they have responded well even at a dose of Revlimid 10 mg and dex 20 mg. The difference in side effects was really significant with the lower dose (except for the taste issues).

[James Szalay]

Re: Experience with Revlimid maintenance

by James Szalay on Thu Dec 11, 2014 10:53 pm

To Dallas, I have been on low-dose maintenance for 3 years. Revlimid 5mg 21 days out of 28. Velcade weekly with dex 8 mg on shot day (3 weeks out of 28 days). Also am getting Zometa monthly. Only side effect is slight neuropathy. Maybe a slight improvement on my off week, but I feel pretty good most of the time anyway. I expect to be taken off all meds when I return to UAMS in February. I feel blessed to have survived this far (4 years) and feel like something besides multiple myeloma will take me out.

A note, I take my Revlimid at bedtime. Somewhere along the line I was told it would make me sleepy.