[CM]

Drug Help

by CM on Sat Mar 06, 2010 10:49 pm

Where do I find information on help with drug costs? Also, what's the best support group for family members of someone with Multiple Myeloma?

[Fred]

Re: Drug Help

by Fred on Sat Mar 06, 2010 11:57 pm

Hi CM,

Where are you located? Most support groups are local. Although there may be a few online groups.

Here are a few programs that will help with drug costs:

Leukemia & Lymphoma Society
http://www.leukemia-lymphoma.org/all_page?item_id=4599

Chronic Disease Fund
http://www.cdfund.org/Patient/patient1.aspx

Patient Advocate Foundation
http://www.copays.org/resources/myeloma.php

American Cancer Society - Hope Lodge
http://www.cancer.org/docroot/subsite/hopelodge/index.asp

Cancer Care
http://www.cancercare.org/get_help/assistance/cc_financial.php

Patient Access Network Foundation
https://www.panfoundation.org/index.php?

Also, most of the drug companies have patient assistance programs. You can check out their websites.

[Marie]

Re: Drug Help

by Marie on Sun Mar 07, 2010 12:08 am

Fred, I have heard that the Chronic Disease Fund is really helpful. I'm considering applying for help from them. Does anyone have any experience with them?

CM, here are a few more patient assistance programs that I'm aware of. These aren't drug reimbursement programs, but they may be helpful anyway. The first two help with the cost of airfare to and from treatment, and the second is a home cleaning service for cancer patients.

Angel Flight: http://www.angelflight.com/default.asp

Corporate Angel Network: http://www.corpangelnetwork.org/

Cleaning for a Reason: http://www.cleaningforareason.org/index.html

[CM]

Re: Drug Help

by CM on Tue Mar 09, 2010 7:22 pm

Thank you both, that's very helpful!

[Julie Shilane]

Re: Drug Help

by Julie Shilane on Fri Mar 12, 2010 2:53 pm

As of February 1, the Leukemia & Lymphoma Society provides up to $10,000 to help with co-payments and insurance premiums.

More information is provided in the first item in our Beacon NewsFlashes from February 5.

[NH]

Re: Drug Help

by NH on Fri Mar 12, 2010 2:58 pm

Hi CM,

Check out this link for support groups based on your area:
https://myelomabeacon.org/links/support-groups/

I hope that helps!

[Patrick]

Re: Drug Help- Revlimid US $450 or $10,000?

by Patrick on Wed Mar 30, 2011 10:53 pm

I am a multiple myeloma patient who was lucky enough to have health insurance for my RX.

But I read that many do not have insurance. Celgene charges about $10,000 per month for my Revlimid, but I see there is a company from India called NATCO Pharma that sells the "equivalent" of Revlimid in Canada for about US $450 for a month supply. All this needs to be researched as to quality control etc. but it could be a lead for the uninsured patients. I know internet drugs can be very questionable, but NATCO seems to have a 10 year history as a generic drug manufacturer. So it at least should be closely researched- it could be a scam or could be an alternative. Ask your doctor or phamacy for starters. And if NATCO is not making the real deal, why is Celgene suing NATCO over patent rights??? Links below.

This is not a recommendation, just an academic discussion.

http://www.canadadrugs.com/group/Revlimid%2010mg/17776/

http://www.dnaindia.com/money/report_natco-readies-for-litigation-with-celgene-over-generic-revlimid_1431800

[GES]

Re: Drug Help

by GES on Tue May 10, 2011 9:22 pm

Hi CM,


What medication are you or your loved one on? No insurance?