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General questions and discussion about multiple myeloma (i.e., symptoms, lab results, news, etc.) If unsure where to post, use this discussion area.

Re: Don Baylor - multiple myeloma in the spotlight

by Multibilly on Wed Apr 09, 2014 4:59 pm

Thanks for the google suggestion Nancy. I didn't quite realize how hotly debated bisphosphonates have become in the medical industry, especially when it comes to their longer term use. From just a quick survey of some of the articles, it seems like they may be a good thing for preventing vertebral fractures, but may have just the opposite effect when it comes to femoral fractures (forced into a choice, I guess I would opt to prevent a vertebral fracture versus a femoral fracture....but who really wants a choice like that?).

The following article seems like one of the more balanced summaries of the situation:

http://www.sciencedaily.com/releases/2011/05/110505083222.htm

Seems like there have been a couple of threads on this subject recently and that it would be wise for anyone taking bisphosphonates for a prolonged length of time to do their homework.

Like so many things with multiple myeloma, it seems like a calculated tradeoff regarding their use.

You might want to think twice about watching the Don Baylor clip unless you enjoyed the 70's film "The Exorcist". No person's body parts should move like that. It made me shudder all over when I watched it.

Multibilly
Name: Multibilly
Who do you know with myeloma?: Me
When were you/they diagnosed?: Smoldering, Nov, 2012

Re: Don Baylor - multiple myeloma in the spotlight

by Stann on Tue Aug 08, 2017 12:20 am

Don Baylor passed away yesterday. He was 68. He had multiple myeloma for 14 years. I'm not sure if his path of treatment is public knowledge, but if so it would be interesting to know.

If I remember my multiple myeloma history, 2003 would have been the very early years of Revlimid, and pre-Velcade pomalidomide. Not to mention all the other lesser known novel agents that had not been approved.

14 years in 2004 should be good news for those recently diagnosed.

RIP Mr. Baylor. I loved watching you play!

Stann
Name: Stann
Who do you know with myeloma?: Myself
When were you/they diagnosed?: 9/11/09
Age at diagnosis: 46

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