A few months went by, and I started noticing what appeared to be bone pain. Mainly arms and shoulders. I went back to my primary who now labeled me a hypochondriac I'm sure. He did basic cbc and a few other tests that all came back fine, except elevated calcium and parathyroid slightly high. He sends me to a endocrinologist who runs a bunch of tests to rule out hyperparathyroidism. All tests come back fine.
I go on a diet prior to my honeymoon and that makes me feel so so. I return from my honeymoon in October. Come November, I immediately notice that my health is getting worse as far as bone pain, fatigue, knees going numb, hands and feet tingling, teeth chattering, and the list goes on. Bone pain was so bad I took myself to the ER in December and in January; both times I was cleared and told I was fine.
Fast forward to 2 weeks ago. My wife works in a hospital and suggested I see a neurologist for all my complaints. I see him, and he runs a slew of blood tests; 16 vials to be exact
He also orders a brain and spin MRI. He calls me this past Wednesday evening at home and says my MRI came back fine and in my spine on the right side I have a herniated disc. He then begins to tell me that my immunoelectrophoresis came back what he labeled "trivially" high. IgM serum was 277 with range being 48-271.He proceeds to tell me that I should follow up with a hematologist. Here is my concern: I ended up swinging by the doctor's office to pick up my blood results. I like to always have copies for my record.
Upon looking at my results, I see he ran what is called a "Freelite Serum" test. He didn't discuss the results with me over the phone, and I'm still waiting on his call. Here are the numbers.
Free Kappa Serum is 19.9 Range being 3.3 - 19.4 so that's high.
Free Lambda Serum is 11.2 Range being 5.7 - 26.3 so that is fine.
Free Kappa/Lambda Ratio is 1.78 Range being 0.26 - 1.65 so that is high.
So of course I'm concerned, and I start googling everything under the sun. And that is how I stumbled across the Myeloma Beacon.
Everything I have read when I google abnormal freelite comes back to myeloma over and over. What scares me even more is I have extreme bone pain in my ribs, chest, and back bones since November. I have an appointment with a hematologist this coming Wednesday.
I would like to hear some options / facts from some of the experienced people here. I have to be honest with you and say I was hysterical crying in the shower this morning. Not sure if I'm jumping the gun here, but I feel this may be serious.
Thanks in advance, Mike.
