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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Do Supplements help?

by scurtiss on Sun Oct 14, 2012 8:38 pm

I am new to the forum. My husband has just been diagnosed on 10/8/12 when we went to the ER for severe back and rib pain. Blood work showed elevated protein levels and MRI and CT scan showed innumerable lytic lesions. So here I am researching what I can to figure out what path we will take. Bone biospy scheduled for Tuesday to learn more. Has anyone had experience using supplements to fight cancer. I stumbled on a site

cancerfightingstrategies [dot] com

that recommends using PrugX, BLA, MC2 in large amounts to kill the cancer cells. My husband also has HepC so I am sure that will complicate matters. Any insight is appreciated.

scurtiss
Name: SCurtiss
Who do you know with myeloma?: Husband
When were you/they diagnosed?: 10/8/2012
Age at diagnosis: 56

Re: Do Supplements help?

by LibbyC on Mon Oct 15, 2012 6:44 am

Hi Scurtiss,
Please be careful when using supplements. I know it can be very bewildering when someone has only recently been diagnosed (dx). So many people were trying to help me when I was first dx, suggesting I do this, or take these supplements etc. Eventually I gave in to someone who thought they were trying to help me by taking something that was supposed to "help fight cancer" and was "natural". I thought can it do any harm? It boosted my immune system thereby boosting my cancer and perhaps interferred with the chemo I was on putting me in a worse place. When I stopped taking the extract (and this was the only thing I changed) my paraprotein (M protein) decreased instead of going up.

If your husband is going to take supplements make sure you discuss it with your oncologist first. Try to find out the active ingredients and do a search on those for any immunomodulatory properties. If in doubt dont take it.

I had a look at the website and right down the bottom is this disclaimer.
Disclaimer: These statements have not been evaluated by the Food and Drug Administration. The products and information contained herein are not intended to diagnose, treat, cure, or prevent any diseases or, medical problems. It is not intended to replace your doctor's recommendations.

LibbyC
Name: LibbyC
Who do you know with myeloma?: myself
When were you/they diagnosed?: 2009
Age at diagnosis: 43


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