[angieevangelou]

Dizziness, neuropathy & loss of appetite with MGUS

by angieevangelou on Fri Jan 20, 2017 5:12 pm

I've been in hospital in the UK for the past 4 days due to extreme diziness, breathlessness, neuropathy, and loss of appetite. I've hardly been able to stay awake. This is probably due to my multiple sclerosis, but I'm waiting for an MRI to check after 3 wards, no treatment, and 3 days to get actually taken to hospital after calling 111 out of hours GP, normal GP. Saw yet another doctor on morning rounds today and he asked what medical conditions I had and when I got to MGUS, he said 'Well that's not really a thing!'

I replied I'm high risk, so it definitely is a thing for me, and I am pretty sure my myeloma docs think it is! SO annoyed!

Can these symptoms be attributed to MGUS? I also have multiple sclerosis, pancreatitis, and psoriatic arthropathy, plus I'm on blood thinners after 3 embolisms in my brachial artery two years ago.

[ricejon]

Re: Dizziness, neuropathy & loss of appetite with MGUS

by ricejon on Thu Feb 02, 2017 11:02 am

Hi Angie,

I have MGUS and peripheral neuropathy. I feel your frustration, as I am also still looking for answers. Good luck in your quest and recovery!

Stay well,
Jon