[blue]

Difficult case of IgD multiple myeloma

by blue on Sun Jun 02, 2013 4:49 pm

Hello everyone,
It's 1 year since my father's diagnosed IgD myeloma stage II - end of May / beginning of June 2012, with lesions in cranial bones, osteoporosis in arms, and progressive collapse of thoracic and lumbar vertebrae. Also very high calcium levels. He started chemo, CTD protocol - cyclophosphamide, thalidomide and dexametazone. After 1st cycle chemo was stopped and he needed to go to radiation of thorax area, because of very bad condition of vertebrae and strong chest and back pain. Pain was weaker after radiation, and he continued chemo.
He responded well the treatment, and stem cells were harvested after 6 cycles (in December 2012). No drugs until ASCT, which was planned for the end of January 2013. That was delayed, and my father started to feel great pain in his head by the end of February. He had problems with swallowing food, and later right-side facial paralysis happened, together with clearly visible tumor mass on the back of the neck just below and on the lower part of occipital bone, few centimeters in radius. Scan confirmed that.
Doctors started him on salvage D(t)- PACE protocol (he didn't took thalidomide), which he took with lot of difficulties because of cisplatin. Tumor mass disappeared. 10-15 days after 1st cycle he started to feel pain again, and again tumor mass started to grow. .. During 2nd cycle drugs were dosed in lesser amounts. Again the same situation as after 1st cycle. Doctor said prognosis is very bad, not wanting to talk about time period.
My father had ASCT yesterday. I'm scared a bit, worried, but hoping for the best... reading and reading forums and sci medical journals..
That's it.
I'd like to share my experience and little knowledge on topic..

p.s. sorry my English isn't very good