Tuesday, August 15, -27 days to transplant:
Today is 'dex day,' or, as my family and the nurses who handle my Kyprolis infusions say, "squirrel day." Indeed, this afternoon they will be certain to give me a chair next to the window looking out at the grounds so that I can see the squirrels, rabbits, and occasional other critter that dashes in and out of the desert scrub. My day would be very incomplete if I didn't see one or two and draw everybody's attention to it.
When I am nervous, I tend to talk. A lot. On "dex day," that tendency just amps up past all reason. (sigh) The only good thing is that it seems I'm an entertaining talker. The nurses don't make all sorts of excuses to get away from me, anyway. That's something, right?
I only have one more 'dex day' after this one. Wheee!
I still don't have the schedule / list of tests I need to have done before the transplant. My coordinator said she'd have it to me by last Friday, but I can certainly see why she might not be able to get all of it organized quite yet, with the weekend interfering: nobody 'home' to schedule things with.
So, I'm sitting on my hands (figuratively, of course; I'm actually typing – duh) and waiting.
My caregiver team, however, has gone into overdrive, dividing the days between them. My sister is coming down from Utah to be with me for a week, my daughter is arranging for the days off so she can handle the melphalan and transplant days, another sister is arranging to do all the 'in house' stuff (taking care of my parents, the housekeeping, and my dog) so that she can 'take care of me' and await her first granddaughter, my son and his new wife are in the mix somewhere. I get the feeling that I'm not really expected to contribute to those conversations.
As for me, well, I have finished the quilt top for the above mentioned baby. Now I just need to quilt and bind it. I began a new shawl with some cashmere yarn I just happen to have, and I think now is the time to begin that 'block of the month' quilt kit I bought last January for Mom.
As I mentioned in another post, I love loose ends. Everybody should have a few. It's a statement of optimism; of course I'm going to do well; I have things to finish!
That's my goal, anyway. To always have things left to finish. As soon as I finish one thing, I begin another. Shoot, in times of stress, I skip the 'finish one thing' part and just go to 'begin another.' When I finally exit the planet, as we all must, then, when my kids and siblings clean up after me and find those projects, they will think of me and either finish those things themselves, having fond, or not so fond, memories of our time together, or else complain to one another: "What was she thinking?' and that project will end up in their stashes. Either way works for me.
