I was diagnosed last May 2013. I have been on Velcade with some steroids. Then they changed my treatments to lenalidomide [Revlimid] pills.
I have hot top leg area and cold feet. I am always tired. Lately I have a very hot looking red face.
Anyone have any insights?
Forums
2 posts
• Page 1 of 1
Re: Diagnosed a year ago - currently on Revlimid
Hi Garfield,
I was concerned reading your post. You should definitely seek medical advice. I've been on Revlimid maintenance going on 2 years. I have not had the redness you speak of, but I'm wondering if it might be an allergic reaction. Again, I would seek medical advice immediately.
As far as the "I have hot top leg area and cold feet", possibly this could be related to the previous Velcade treatment you were on and the current treatment of Revlimid. Sounds like it is a circulation issue and it might be peripheral neuropathy. Again, just guessing here.
I had a previous course of VRD from May - August, 2011 prior to my stem cell transplant (SCT) in November 2011, and I suffered terrible peripheral neuropathy (PN). I still have the PN to some degree, but take Metanx twice daily, which has helped quite a bit.
I also am still very tired most of the time from all I've been through and what I think is a continued side effect of the Revlimid. I work a 6-hour work day and I'm exhausted by the time I get home.
Good luck with getting to the bottom of your "symptoms" and please let us know what you find out.
Best Regards!
Lisa
I was concerned reading your post. You should definitely seek medical advice. I've been on Revlimid maintenance going on 2 years. I have not had the redness you speak of, but I'm wondering if it might be an allergic reaction. Again, I would seek medical advice immediately.
As far as the "I have hot top leg area and cold feet", possibly this could be related to the previous Velcade treatment you were on and the current treatment of Revlimid. Sounds like it is a circulation issue and it might be peripheral neuropathy. Again, just guessing here.
I had a previous course of VRD from May - August, 2011 prior to my stem cell transplant (SCT) in November 2011, and I suffered terrible peripheral neuropathy (PN). I still have the PN to some degree, but take Metanx twice daily, which has helped quite a bit.
I also am still very tired most of the time from all I've been through and what I think is a continued side effect of the Revlimid. I work a 6-hour work day and I'm exhausted by the time I get home.
Good luck with getting to the bottom of your "symptoms" and please let us know what you find out.
Best Regards!
Lisa
-
Anonymous Today
2 posts
• Page 1 of 1
Return to Member Introductions / Personal Stories