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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: Dee’s stem cell transplant process

by DeeBaker45 on Sun Feb 18, 2018 7:25 pm

Today is Day +11. I’ll be honest, I haven’t posted in a couple days because they were pretty rough. A lot of nausea and just feeling tired and rundown. This morning my white blood count was at 1.90 and I have been feeling much better today. The doctor said I should be able to go home on Tuesday!

DeeBaker45
Name: D'Anne
Who do you know with myeloma?: Myself
When were you/they diagnosed?: June 2017
Age at diagnosis: 45

Re: Dee’s stem cell transplant process

by mammiev on Mon Feb 19, 2018 12:13 am

Dee,

I have been following your transplant process. Thank you for taking so much time and energy to help others get a better picture of what to expect if / when we reach that point.

I just began this journey and am trying to find out all I can about multiple myeloma.

Again, thank you so much for your time. May each day get better and better for you. Look forward to hearing more of your journey.

mammiev
Name: Nora Verrett
Who do you know with myeloma?: I have multiple myeloma.
When were you/they diagnosed?: I was diagnosed Nov. 16, 2017.

Re: Dee’s stem cell transplant process

by DeeBaker45 on Tue Feb 20, 2018 11:46 am

Day +15

I am going home from the hospital today. My white blood count is at 8.8. All in all, besides the few days of feeling pretty sick, the stem cell transplant process was certainly not as scary as I had predicted in my head. Fear of the unknown is obviously the worst.

They are not sending me home with many drugs. I have had shingles in the past, so I will now take acyclovir for life as a preventative. Other than that, Compazine (pro­chlor­per­a­zine) and Zofran (ondansetron) as needed.

DeeBaker45
Name: D'Anne
Who do you know with myeloma?: Myself
When were you/they diagnosed?: June 2017
Age at diagnosis: 45

Re: Dee’s stem cell transplant process

by Cheryl G on Tue Feb 20, 2018 9:42 pm

Congratulations on getting the OK to go home from the hospital today, D’Anne. I'm happy the (hopefully) worst of the transplant process is behind you, and that it wasn't nearly as challenging as you feared.

I've enjoyed reading your updates, and I hope your remission lasts a very, very long time.

Cheryl G

Re: Dee’s stem cell transplant process

by DeeBaker45 on Sun Feb 25, 2018 6:43 pm

Day +18

I had my first follow up appointment last Thursday. They were happy with my numbers and I did not need any supplements. I have to say that so far I have not had the overwhelming feeling of being tired like the doctor said happens to transplant patients. He did say it could still happen, but right now, I’ll take it The biggest issue is that I still get bouts of nausea. Other than that, I’ve been trying to stay active – stationary bike, resistance bands, and walks in the neighborhood when the weather has been decent.

DeeBaker45
Name: D'Anne
Who do you know with myeloma?: Myself
When were you/they diagnosed?: June 2017
Age at diagnosis: 45

Re: Dee’s stem cell transplant process

by Ian on Tue Feb 27, 2018 6:12 am

Very glad to hear that you're back home, D'Anne, and that your energy levels are holding up better than you and your doctors expected. Let's hope that keeps on being the case, and that your nausea doesn't last much longer.

Good luck!

Ian

Re: Dee’s stem cell transplant process

by smithy09 on Wed Mar 21, 2018 4:20 pm

Thanks for the detailed journal about your transplant, Dee. I am currently smoldering, so all this will be in front of me I guess. It is very interesting to get a step-by-step account of what happens with a stem cell transplant. It doesn't sound as scary as I though it might be!

I hope your great progress continues and your remission is extremely long. Thanks again! Cheers, Craig.

smithy09
Name: Smithy
When were you/they diagnosed?: Jan 2017
Age at diagnosis: 58

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