After Extensive Surgery, Radiation, Induction, Stem cell stimulation/ collection, a new hip, and 2 years of low dose Revlimid and monthly zometa infusions....I have noticed many health changes. Not surprising, in and of, itself.
One in particular is Lung Function. Despite working out and exercising--my baseline Lung function appears to have diminished in a substantial way.
Does any one else have an experience along these lines ?
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Re: Decreased lung function after treatment - anyone else?
Rneb, My husband was diagnosed 8 years ago. He had surgery (plate in arm due to lesion); he did not have a SCT, but started on Revlimid (20-25 mg) that worked its magic for almost five years. He did have Zometa monthly for quite a while, but has been cut back to every three months. He's been on carfilzomib (Kyprolis), melphalan, and most recently pomalidomide (Pomalyst).
Shortness of breath has been a factor. He stopped Polmalyst about 6 days into Cycle 7 as it was causing him to be significantly more short of breath. That situation has resolved somewhat though he is still short of breath. So, we'd say "yes" - the myeloma itself and the treatments for it caused shortness of breath in his case. The "new normal" quality of life is different, but still so good.
For general interest - my husband started on a new (old) drug called bendamustine (Treanda); his first two days of infusion were June 17 and 18. So we will have a few weeks before we know results. He takes this combined with Revlimid 10 mg. I believe Treanda was previously used for leukemia patients, but also found to work well in heavily treated myeloma patients.
Our prayers and best wishes go with this note - to you and to all fellow travelers. Sioux B
Shortness of breath has been a factor. He stopped Polmalyst about 6 days into Cycle 7 as it was causing him to be significantly more short of breath. That situation has resolved somewhat though he is still short of breath. So, we'd say "yes" - the myeloma itself and the treatments for it caused shortness of breath in his case. The "new normal" quality of life is different, but still so good.
For general interest - my husband started on a new (old) drug called bendamustine (Treanda); his first two days of infusion were June 17 and 18. So we will have a few weeks before we know results. He takes this combined with Revlimid 10 mg. I believe Treanda was previously used for leukemia patients, but also found to work well in heavily treated myeloma patients.
Our prayers and best wishes go with this note - to you and to all fellow travelers. Sioux B
Re: Decreased lung function after treatment - anyone else?
Hi Rneb,
Yes, I too have noticed a marked decrease in lung function. I've had two stem cell transplants. I had a VAD regimen before the first SCT, and a couple of months of Velcade, but my lungs didn't seem to be affected. The last SCT was in 2012. I aced all the lung function tests before the transplant, but it didn't take me long to notice the difference afterward. I am an amateur musician/vocalist, and I can no longer hold a note to save my neck. As a result, I hardly ever sing or play anymore.
The only thing I had before the second SCT was Velcade. I've noticed that my energy level has decreased significantly this time too. Seems that the further out I am from my last SCT, the more I notice I'm 'the old grey mare ain't what she used to be'. I don't know, maybe that is to be expected after a second SCT.
My prayers are with you too.
God bless,
Mary
Yes, I too have noticed a marked decrease in lung function. I've had two stem cell transplants. I had a VAD regimen before the first SCT, and a couple of months of Velcade, but my lungs didn't seem to be affected. The last SCT was in 2012. I aced all the lung function tests before the transplant, but it didn't take me long to notice the difference afterward. I am an amateur musician/vocalist, and I can no longer hold a note to save my neck. As a result, I hardly ever sing or play anymore.
The only thing I had before the second SCT was Velcade. I've noticed that my energy level has decreased significantly this time too. Seems that the further out I am from my last SCT, the more I notice I'm 'the old grey mare ain't what she used to be'. I don't know, maybe that is to be expected after a second SCT.
My prayers are with you too.
God bless,
Mary
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inky100 - Name: Mary
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: 2005
- Age at diagnosis: 43
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