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Re: Debbie's Stem Cell Transplant Journey
Tears in my eyes. What a great moment to be near Mona again. How did she react?
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wekebu - Name: Wendy
- Who do you know with myeloma?: Hubby
- When were you/they diagnosed?: Jan 2016
- Age at diagnosis: 55
Re: Debbie's Stem Cell Transplant Journey
Hi!
Thanks for all of the well wishes. Mona was very happy to see me! She picked her head up, ears up, and walked slowly toward me. Her pasture mate (who I have known for many years) wasn't quite sure about me (the mask, sunglasses, gloves) and she didn't take the carrot that I offered. But, Mona came right up to the fence and nickered at me. It was so sweet!
Thanks for all of the well wishes. Mona was very happy to see me! She picked her head up, ears up, and walked slowly toward me. Her pasture mate (who I have known for many years) wasn't quite sure about me (the mask, sunglasses, gloves) and she didn't take the carrot that I offered. But, Mona came right up to the fence and nickered at me. It was so sweet!
Re: Debbie's Stem Cell Transplant Journey
So glad to see that you are doing so well, Debbie. I hope you continue to feel better, and that you've gotten a deep response from the transplant procedure.
Re: Debbie's Stem Cell Transplant Journey
Hi Debbie,
Thank you for sharing the wonderful photos of you and Mona! It's so great to see that you are doing so well and getting back to the things you love! It is inspirational for all of us following in your footsteps!
Karen
Thank you for sharing the wonderful photos of you and Mona! It's so great to see that you are doing so well and getting back to the things you love! It is inspirational for all of us following in your footsteps!
Karen
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KarenaD - Name: Karen
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: November 4, 2015
- Age at diagnosis: 54
Re: Debbie's Stem Cell Transplant Journey
Hi Debbie,
Our stem cell transplant journeys are pretty similar. I am at Day +47 and am also feeling almost back to normal. I went running again (3 miles) for the first time yesterday. It feels so good to be able to do the things that I enjoyed prior to the transplant. Next step is to return to work. I will be seeing my doctor within the next 2 weeks and fully expect to be released and able to go back to my job. Thankful to have an employer who held my position for me.
For those about to begin the SCT process, I know that everyone's recovery varies, but if you were able to do something prior to the treatment you should be able to do it again after the treatment. Stay positive and move at your own pace.
Our stem cell transplant journeys are pretty similar. I am at Day +47 and am also feeling almost back to normal. I went running again (3 miles) for the first time yesterday. It feels so good to be able to do the things that I enjoyed prior to the transplant. Next step is to return to work. I will be seeing my doctor within the next 2 weeks and fully expect to be released and able to go back to my job. Thankful to have an employer who held my position for me.
For those about to begin the SCT process, I know that everyone's recovery varies, but if you were able to do something prior to the treatment you should be able to do it again after the treatment. Stay positive and move at your own pace.
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deeboz - Name: Deedra
- Who do you know with myeloma?: me
- When were you/they diagnosed?: March 2015
- Age at diagnosis: 52
Re: Debbie's Stem Cell Transplant Journey
Debbie,
It sounds like you're doing great in your post transplant journey - that's awesome.
I'm glad I've found the Beacon and specifically this thread. My wife will be undergoing a stem cell transplant at the end of June (inpatient at Brigham & Women's), and I've been reading whatever I can find to figure out what her next 3-6 months could be like.
In my mind I've been anticipating a much slower recovery, so it's good to see how well you're progressing.
It sounds like you're doing great in your post transplant journey - that's awesome.
I'm glad I've found the Beacon and specifically this thread. My wife will be undergoing a stem cell transplant at the end of June (inpatient at Brigham & Women's), and I've been reading whatever I can find to figure out what her next 3-6 months could be like.
In my mind I've been anticipating a much slower recovery, so it's good to see how well you're progressing.
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jer14 - Who do you know with myeloma?: Wife
- When were you/they diagnosed?: January
- Age at diagnosis: 47
Re: Debbie's Stem Cell Transplant Journey
Ok, I am 3 months post transplant, and I just got my labs back. My M-spike went from 0.42 g/dL to 0.24 g/dL (4.2 g/L to 2.4 g/L).
No Bence Jones or monocolonal bands in urine.
I am assuming this will be interpreted as 'partial remission'? I know that my initial numbers were low, and now are lower, but they are still there.
I was hoping for a complete remission, but suppose that I have to be happy that the numbers aren't higher than they are.
Anyone have answers as to just how much of a remission I am in?
Or if a tandem transplant might put me into complete remission?
Total Protein For PEP 7.1 g/dL 6.1 - 8.2 g/dL
Immunoglobulin G Serum 866 mg/dL 700 - 1600 mg/dL
Immunoglobulin M Serum 75 mg/dL 40 - 230 mg/dL
Free Kappa 11.88 mg/L 3.30 - 19.40 mg/L
Free Lambda 9.99 mg/L 5.71 - 26.30 mg/L
Kappa/lambda ratio 1.19 0.26 - 1.65
Immunoglobulin A Serum <5 mg/dL 70 - 400 mg/dL
Albumin Fraction 4.05 g/dL 2.90 - 5.10 g/dL
Protein EP - Alpha 1 Fraction 0.28 g/dL 0.10 - 0.40 g/dL
Protein EP - Alpha 2 Fraction 0.66 g/dL 0.50 - 1.10 g/dL
Protein EP - Beta Fraction 1.03 g/dL 0.70 - 1.60 g/dL
Protein EP - Gamma Fraction 1.08 g/dL 0.60 - 2.00 g/dL
Total Protein 7.1 g/dL 6.1 - 8.2 g/dL
Protein EP Interpretation: Monoclonal gammopathy.
Interpretation performed by pathologist: X, MD
Immunofixation Electrophoresis:
Monoclonal band(s) present, IgG lambda, 0.24 g/dL.
No Bence Jones or monocolonal bands in urine.
I am assuming this will be interpreted as 'partial remission'? I know that my initial numbers were low, and now are lower, but they are still there.
I was hoping for a complete remission, but suppose that I have to be happy that the numbers aren't higher than they are.
Anyone have answers as to just how much of a remission I am in?
Or if a tandem transplant might put me into complete remission?
Total Protein For PEP 7.1 g/dL 6.1 - 8.2 g/dL
Immunoglobulin G Serum 866 mg/dL 700 - 1600 mg/dL
Immunoglobulin M Serum 75 mg/dL 40 - 230 mg/dL
Free Kappa 11.88 mg/L 3.30 - 19.40 mg/L
Free Lambda 9.99 mg/L 5.71 - 26.30 mg/L
Kappa/lambda ratio 1.19 0.26 - 1.65
Immunoglobulin A Serum <5 mg/dL 70 - 400 mg/dL
Albumin Fraction 4.05 g/dL 2.90 - 5.10 g/dL
Protein EP - Alpha 1 Fraction 0.28 g/dL 0.10 - 0.40 g/dL
Protein EP - Alpha 2 Fraction 0.66 g/dL 0.50 - 1.10 g/dL
Protein EP - Beta Fraction 1.03 g/dL 0.70 - 1.60 g/dL
Protein EP - Gamma Fraction 1.08 g/dL 0.60 - 2.00 g/dL
Total Protein 7.1 g/dL 6.1 - 8.2 g/dL
Protein EP Interpretation: Monoclonal gammopathy.
Interpretation performed by pathologist: X, MD
Immunofixation Electrophoresis:
Monoclonal band(s) present, IgG lambda, 0.24 g/dL.
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