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Re: Dean's Stem Cell Transplant (London, England)
Good luck Dean. I'm glad you have a bed. The high dose chemo day for us was uneventful. Even the transplant was. Its everything that comes after.
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TCG - Name: Tara
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: June 2016
- Age at diagnosis: 43
Re: Dean's Stem Cell Transplant (London, England)
Good luck Dean. I think we've learned this adventure can be a little different for everyone, but I think your good attitude can only help. We will all be with you in spirit.
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Mark Pouley - Name: Mark
- Who do you know with myeloma?: Self
- When were you/they diagnosed?: April 2015
- Age at diagnosis: 53
Re: Dean's Stem Cell Transplant (London, England)
Congratulations Dean. I am thrilled you have gone in.
I also went in yesterday. I am waiting to get the first dose of chemo. All the best for your treatment. I have started a forum thread to share my own transplant journey, in case you're interested.
I also went in yesterday. I am waiting to get the first dose of chemo. All the best for your treatment. I have started a forum thread to share my own transplant journey, in case you're interested.
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Barbara SA - Name: Barbara SA
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: November 2015
- Age at diagnosis: 55
Re: Dean's Stem Cell Transplant (London, England)
Thank you all.
I will be having my high-dose chemo very soon today. This is the part I'm not sure what to expect. If I can, I will update depending on how I feel.
Regards, Dean
I will be having my high-dose chemo very soon today. This is the part I'm not sure what to expect. If I can, I will update depending on how I feel.
Regards, Dean
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Dean UK - Name: Dean
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: April 2016
- Age at diagnosis: 41
Re: Dean's Stem Cell Transplant (London, England)
Wishing you the best of luck, Dean, and smooth sailing through the chemo.
From what I've read on this Forum and elsewhere, an autologous transplant has become a very safe procedure these days and if any issues do develop, the clinicians generally have a solution readily at hand.
Rest and relax while those myeloma cells get wiped out! (Forever, I hope.)
From what I've read on this Forum and elsewhere, an autologous transplant has become a very safe procedure these days and if any issues do develop, the clinicians generally have a solution readily at hand.
Rest and relax while those myeloma cells get wiped out! (Forever, I hope.)
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MrPotatohead - Name: MrPotatohead
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: March, 2015
- Age at diagnosis: 65
Re: Dean's Stem Cell Transplant (London, England)
Hi Dean,
I was / still am worried about the high-dose chemo myself. My husband had his on Sunday. Getting the chemo was pretty uneventful for him. But I know that it can and often packs a punch days afterward. So far he's doing okay with it, but it may not have hit him yet. He did chew the ice before, during, and for an hour after the treatment to keep it from causing the mouth and digestive issues (mucositis I think its called). He also took L-glutamine weeks before to help coat the digestive track.
He got his stem cells on Monday. That was also uneventful so far. The main thing he noticed was he could taste it going in. He said it reminded him of black pepper. It also causes his skin to smell like creamed corn. (Apparently it's the preservatives the stem cells are stored in that causes this.)
Hes' gone in each day for checkups. His numbers are slowly declining but nothing dramatic yet. He also had 4 days of dex and that gave him the serious case of the hiccups, but muscle relaxers seem to help with that. We are just trying to prepare ourselves for how he might feel in a few days. So far so good, all things considered.
I know you will do well. You, Chad, TexGal's husband, and my husband are around the same age group. It will be interesting to see any similarities in our experiences. Please keep us posted as much as you can. I will be praying for you.
I was / still am worried about the high-dose chemo myself. My husband had his on Sunday. Getting the chemo was pretty uneventful for him. But I know that it can and often packs a punch days afterward. So far he's doing okay with it, but it may not have hit him yet. He did chew the ice before, during, and for an hour after the treatment to keep it from causing the mouth and digestive issues (mucositis I think its called). He also took L-glutamine weeks before to help coat the digestive track.
He got his stem cells on Monday. That was also uneventful so far. The main thing he noticed was he could taste it going in. He said it reminded him of black pepper. It also causes his skin to smell like creamed corn. (Apparently it's the preservatives the stem cells are stored in that causes this.)
Hes' gone in each day for checkups. His numbers are slowly declining but nothing dramatic yet. He also had 4 days of dex and that gave him the serious case of the hiccups, but muscle relaxers seem to help with that. We are just trying to prepare ourselves for how he might feel in a few days. So far so good, all things considered.
I know you will do well. You, Chad, TexGal's husband, and my husband are around the same age group. It will be interesting to see any similarities in our experiences. Please keep us posted as much as you can. I will be praying for you.
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TCG - Name: Tara
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: June 2016
- Age at diagnosis: 43
Re: Dean's Stem Cell Transplant (London, England)
Mr Potatohead - Thanks very much. How has the new treatment plan been, have you started it yet? You have been in my thoughts.
Tara - Thanks for your husbands update. I wish you both the best of luck.
Not much has happened yet since my chemo, but I didn't fancy dinner, so maybe this is a sign of things to come.
In the UK you have to be a inpatient. Fortunately I have my own room, which helps the situation when I get sick later. I did ask the nurse for ice. She laughed and said your having a good English mouthwash to use. Was surprised that ice is not used after reading other stem cell transplant journals here in the forum. Must be a different approach in the UK.
All the best on your end. I just have to be well for my daughters at Christmas. I'm going to miss one of my daughter's birthday why being an inpatient. I can't miss Christmas for them. I need this stem cell transplant to go smooth.
Fingers crossed for us all that we are well for Christmas.
Regards,
Dean
Tara - Thanks for your husbands update. I wish you both the best of luck.
Not much has happened yet since my chemo, but I didn't fancy dinner, so maybe this is a sign of things to come.
In the UK you have to be a inpatient. Fortunately I have my own room, which helps the situation when I get sick later. I did ask the nurse for ice. She laughed and said your having a good English mouthwash to use. Was surprised that ice is not used after reading other stem cell transplant journals here in the forum. Must be a different approach in the UK.
All the best on your end. I just have to be well for my daughters at Christmas. I'm going to miss one of my daughter's birthday why being an inpatient. I can't miss Christmas for them. I need this stem cell transplant to go smooth.
Fingers crossed for us all that we are well for Christmas.
Regards,
Dean
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Dean UK - Name: Dean
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: April 2016
- Age at diagnosis: 41
Re: Dean's Stem Cell Transplant (London, England)
Hi Dean,
So far so good on my Darzalex and Kyprolis regimen, which I started last Wednesday, November 16th, and am updating in my "Darzalex and Kyprolis treatment" thread.
Today I received my second Darzalex and fourth Kyprolis infusion (accompanied by the steroid methylprednisolone). Thanks for asking, Dean.
So far so good on my Darzalex and Kyprolis regimen, which I started last Wednesday, November 16th, and am updating in my "Darzalex and Kyprolis treatment" thread.
Today I received my second Darzalex and fourth Kyprolis infusion (accompanied by the steroid methylprednisolone). Thanks for asking, Dean.
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MrPotatohead - Name: MrPotatohead
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: March, 2015
- Age at diagnosis: 65
Re: Dean's Stem Cell Transplant (London, England)
Dean, let us know how that "good English mouthwash" works!. I was thinking that with all the high tech solutions they have to be able to do a transplant, chewing on ice to avoid one of the worst side effects seemed a little unsophisticated! Glad to see you're finally on track, brother! Keep us posted how you're feeling as the days go along!
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chadsnow - Name: Chad Snow
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: May 19, 2016
- Age at diagnosis: 45
Re: Dean's Stem Cell Transplant (London, England)
Dean,
That's so interesting about the ice. That's all I've read is to eat the ice. But apparently not in the UK. I hope the English mouthwash does the trick for you.
I know you are probably very anxious about everything that's going on. Try to relax as much as possible. (I know that's easier said than done. I'm sure I worry enough for me and my husband.)
I know that you will have a fabulous Christmas and be ready for your kids by then. Just keep your faith and things will work out.
That's so interesting about the ice. That's all I've read is to eat the ice. But apparently not in the UK. I hope the English mouthwash does the trick for you.
I know you are probably very anxious about everything that's going on. Try to relax as much as possible. (I know that's easier said than done. I'm sure I worry enough for me and my husband.)
I know that you will have a fabulous Christmas and be ready for your kids by then. Just keep your faith and things will work out.
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TCG - Name: Tara
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: June 2016
- Age at diagnosis: 43
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