[Marie64]

Cytoxan (cyclophosphamide) experiences?

by Marie64 on Fri Dec 20, 2013 8:53 pm

Anyone with Cytoxan experience? My husband starts it infusion on Monday. His blood counts have dropped so much that he can't take Velcade.

[LadyLib]

Re: Cytoxan (cyclophosphamide) experiences?

by LadyLib on Fri Dec 20, 2013 11:52 pm

My husband took Cytoxan (700mg per week). It really did not have much affect except for his hands/feet palms got a little darker and nail bed appeared lighter. No nausea, no hair loss, no other known side effects.

[coop223]

Re: Cytoxan (cyclophosphamide) experiences?

by coop223 on Tue Dec 24, 2013 10:20 pm

Lost my hair.

[dianaiad]

Re: Cytoxan (cyclophosphamide) experiences?

by dianaiad on Wed Dec 25, 2013 1:08 am

Nausea and thinning hair. I didn't go bald from the oral cytoxan (CyBorDe), but my hair became very, very thin. The nausea was brief and well handled with medication (and lots of ginger tea).

I DID lose my hair from the cytoxan infusion that began the process of getting stem cells ready to harvest for my autologous bone marrow transplant in October, and I have only just now started to get fuzzy again.

Now if I could only get my parents to stop reciting "Fuzzy Wuzzy was a bear" at the drop of one of my hats, all would be good......

[Irish]

Re: Cytoxan (cyclophosphamide) experiences?

by Irish on Fri Dec 27, 2013 9:10 pm

I am on Cytoxan 100 mg a day along with prednisone and Biaxin. Experienced nausea first week. No other side effects, but also it is having no effect on myeloma.

[carolleemp]

Re: Cytoxan (cyclophosphamide) experiences?

by carolleemp on Fri Dec 27, 2013 10:12 pm

I was on oral cytoxan for 4 months this summer. My hair thinned and I has some nausea. I'm now on Revlimid and my hair is beginning to return.

[Kelly K]

Re: Cytoxan (cyclophosphamide) experiences?

by Kelly K on Fri Dec 27, 2013 10:13 pm

My husband just finished a month of cytoxin 400mg IV weekly. He has had some mild nausea (not preventing him from eating) bloating/constipation feeling and fatigue. His blood counts have remained steady. He just had his myeloma labs drawn today. So we will see if it has helped. Best of luck.

[Lin]

Re: Cytoxan (cyclophosphamide) experiences?

by Lin on Sat Dec 28, 2013 2:21 pm

I was given one dose of Cytoxan when my stem cells were going to be harvested. I had nausea and vomiting and lost 20 pounds, I also lost my hair. Has a multiple myeloma specialist recommended this over Revlimid?
Best of luck.
Lin

[LadyLib]

Re: Cytoxan (cyclophosphamide) experiences?

by LadyLib on Sat Dec 28, 2013 10:31 pm

My husband did Cytoxan (700mg/week) for 20 weeks. He did not really have any issues or symptoms. I have noticed his hands/feet are a little darker and his nails are a little more brittle, but nothing real big.