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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: Experience with CyborD treatment regimen?

by KarenaD on Wed Jan 20, 2016 3:19 pm

Tracy,

I haven't experienced any gum irritation/pain as a side effect of cyclophosphamide, but I had heard that it could be a side effect when I was on cyclophosphamide in the past. To be on the safe side, I use Biotene toothpaste and mouth spray when using this drug.

Karen

KarenaD
Name: Karen
Who do you know with myeloma?: Myself
When were you/they diagnosed?: November 4, 2015
Age at diagnosis: 54

Re: Experience with CyborD treatment regimen?

by dogmom on Wed Jan 20, 2016 7:00 pm

My husband is rinsing with Biotene mouthwash twice daily as well. Trying to be proactive. I had breast cancer chemo 11 years ago and used it. I never had a mouth sore.

dogmom
Who do you know with myeloma?: husband
When were you/they diagnosed?: December 2015
Age at diagnosis: 58

Re: Experience with CyborD treatment regimen?

by Little Monkey on Wed Feb 03, 2016 11:48 pm

For all those who have done CyBorD, what are the common side effects around the one hour mark after injection with Velcade? What about the 12 hour mark?

Little Monkey
Name: Little Monkey
Who do you know with myeloma?: Father-stage 1 multiple myeloma
When were you/they diagnosed?: March/April of 2015

Re: Experience with CyborD treatment regimen?

by SK1 on Fri Feb 05, 2016 1:10 pm

My wife had a localized reaction (redness) briefly, after 1-2 of the infusions. There was also a bit of nausea a couple of times early on, but that's it. She generally tolerated it very well.

SK1
Name: SK
Who do you know with myeloma?: Spouse
When were you/they diagnosed?: June 2015
Age at diagnosis: 62

Re: Experience with CyborD treatment regimen?

by Little Monkey on Fri Feb 05, 2016 2:31 pm

Thanks SK. My dad is starting chemo within the hour.

Little Monkey
Name: Little Monkey
Who do you know with myeloma?: Father-stage 1 multiple myeloma
When were you/they diagnosed?: March/April of 2015

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