[gardengirl]

CyBorD side effect question

by gardengirl on Wed Dec 10, 2014 9:42 am

I am wondering if anyone has experienced this..

I have had 6 treatments of CyBorD [cyclophosphamide, bortezomib (Velcade), dexamethasone] so far and have had to adjust the dosage due to side effects. The one thing that is consistent from the beginning is that about 3-4 hours after treatment, I begin to feel an overall sense of "weirdness" that escalates, kind of like the g-forces you feel in Mission Space at Disney World (if anyone has done that ride!). It's a head-to-toe pressure-like feeling and burning sensation; also both legs ache terribly (including the knees).

I have discussed this with my doctor and he acknowledges this, but feels that since it does go away after a few days, he is not concerned. I am an avid walker and this is just messing with my routine!

Thank you in advance!

[Cmouli]

Re: CyBorD side effect question

by Cmouli on Mon Dec 29, 2014 5:27 am

Hi gardengirl,

First of all, greetings to you, I am sorry you are having to go through this at such a young age.
I wish you speedy recovery.

I am replying as no one has replied to your post.

I am no expert at multiple myeloma, but being a caregiver for my dad this past 2 months, let me tell you the side effects he has. The treatment he is given – 20 mg dex and 2 mg Velcade – makes him very exhausted and leaves him with no strength for walking. Of course, I am sure my dad's age has a role to play.

He was unable to walk for the first few chemos. Now, after the 8th chemo, he walks around, but still relies on the walker, although with much more confidence.

In India, my dad's doctor has recommended some supplement called ashwagandha to help him recover. I am not sure how it is abroad.

Good luck to you and may the Higher Power give you and your family lots of strength.

Anu