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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: Curcumin and Velcade

by Kebo on Mon Aug 08, 2016 1:59 pm

Yes, I was taking it on a regular basis, then reduced my dosage and eventually stopped. About 6 months after stopping, I noticed a marked increase in my FLC and immunoglobulins. After re­starting, I was able to reduce my FLC by about 25% but it didn't seem to impact my immuno­globulins like the first time I started it (I probably should have never stopped).

Anyway, my multiple myeloma specialist thought curcumin wouldn't stop multiple myeloma, but can delay it. My regular oncologist echoed the same sentiments.

So, not a cure for sure, but perhaps can delay the onset. By the way, the multiple myeloma drugs we take won't cure it either. In most cases, it comes back.

Kebo
Name: Kebo
Who do you know with myeloma?: self
When were you/they diagnosed?: 2008
Age at diagnosis: 51

Re: Curcumin and Velcade

by Bar-none on Mon Aug 08, 2016 6:00 pm

Hi JohnC,

You are right in that taking the 500 mg capsules is too much. At least it was for me. So I found Doctor's Best 1 gram pills. They are large, but I've gotten good at swallowing them. I take 4 grams in the morning with 1 tablespoon of flax oil and the same dose in the evening with a healthy glass of red wine. Also I added one 60 mg capsule of Theracurmin with each C3 dose. It's still a lot to take and is expensive. So far so good.

Best! BN

Bar-none
Who do you know with myeloma?: Me
When were you/they diagnosed?: 3/14

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