I was diagnosed with MGUS 4 years ago. Recently they did a bone marrow biopsy, which came back clear.
Today I had to have a CT scan of my abdominal area. Prior to the test, they asked all the usual questions (high blood pressure etc., etc.), then the question I was surprised by: Do you have multiple myeloma? I said no but I have been diagnosed with MGUS.
They did the CT scan but would not do it with contrast. I told them I had had contrast before they said no. This test was not ordered by my oncologist; it was my gastro doctor before my colonoscopy. They said he wouldn't need the contrast; he ordered it!
Has anyone else had this happen to them?
Debi
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Debic - Name: Debi
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: August 2015
- Age at diagnosis: 57
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