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Creatinine Level

by Marie64 on Sun Sep 22, 2013 6:57 pm

This is something that we have never had to deal with on my husband's myeloma journey. multiple myeloma was only detected through his Free Kappa Light Chain test. It was never detected through his urine. His creatinine level has gone up from 1.2 to 1.3. Is this something that we need to be overly concerned about. Thank you in advance.

Praying with you for a cure!

Marie64
Name: Marie
Who do you know with myeloma?: Husband
When were you/they diagnosed?: 2010
Age at diagnosis: 45

Re: Creatinine Level

by Anonymous on Mon Sep 23, 2013 11:08 am

I'm sorry i don't really know what the normal creatine value should be. I was looking back over my own blood work and I noticed my creatinine has slowly krept up over the last few years.

When I was diagnosed it was 51 and stayed in the 50's for a year, then I had some tests in the 60's and then recently last year in the 70's and 80's. My last test was 95 and it was flagged abnormal, so they retested it a few months later it is back to 75. (I have had multiple myeloma since 2010)

Not really sure if I should be worried either. I have IGG lambda myeloma, and have had some protein in my samples but not Bence-Jones types.

Anonymous

Re: Creatinine Level

by Wayne K on Mon Sep 23, 2013 12:46 pm

No. That isn't even a rise most likely, but just a day to day variation. I came off of dialysis, necessary because of Bence-Jones clogged kidneys, with a 3 and I continued to drop into the 1.5 range, but I fluctuate around that number.

Wayne K
Name: Wayne
Who do you know with myeloma?: Myself, my sister who passed in '95
When were you/they diagnosed?: 03/09
Age at diagnosis: 70

Re: Creatinine Level

by LadyLib on Mon Sep 23, 2013 10:17 pm

No worries. With multiple myeloma, I have heard anything under the 2.0 is fine. My husband was at 6.6 when diagnosed and his level has gradually went down with treatment. I don't think you have any worries at all.

LadyLib
Name: LadyLib
Who do you know with myeloma?: Spouse
When were you/they diagnosed?: July 2013
Age at diagnosis: 42

Re: Creatinine Level

by poontzy on Fri Sep 27, 2013 9:55 am

The normal range for Creatinine (w/eGFR) is .08-1.3.
Not sure at what levels they start to be concerned.
I do know that my husband who is dialysis dependent, secondary to Multiple Myleoma, runs between 5.1 and 7.6. The higher value is on his non dialysis days.

poontzy

Re: Creatinine Level

by h2omaker on Fri Sep 27, 2013 2:15 pm

What timing!! I was going to ask something similar.

I've been gaining weight / retaining fluids, my creatinine is up to 1.9 and my BUN is up to 25. Kidney problems has been a fear of mine since learning it can be a problem with multiple myeloma.

h2omaker
Name: Tom
Who do you know with myeloma?: me
When were you/they diagnosed?: 9/11/2006
Age at diagnosis: 55

Re: Creatinine Level

by LadyLib on Sat Jan 04, 2014 12:41 am

As stated before, my husband was a 6.6 at diagnosis. his levels appear to be going down each day post transplant. I am hoping this stays the case. he has not done dialysis and is working to stay off of it. Hopefully, the asct will help even more. His kidneys did well through melphalan. We are at Day 4.

LadyLib
Name: LadyLib
Who do you know with myeloma?: Spouse
When were you/they diagnosed?: July 2013
Age at diagnosis: 42


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