[Eeee1979]

Nerve lesion in the cranial area

by Eeee1979 on Sat May 23, 2015 1:04 am

A loved one was diagnosed with multiple myeloma exactly one year ago. He struggled with kidney failure, large chest mass, and then was a warrior through a stem cell transplant this fall. Chemo has continued since stem cell as he was found immediately prior to the stem cell transplant to have extramedullary disease. It had migrated to organs and lymph nodes. The stem cell transplant though took care of those issues, but opened our eyes to the aggressive­ness of this cancer.

Recently he had symptoms of a headache and some mild facial numbness. His wonderful pro­viders immediately ordered an MRI. The result was called to us the same day and noted a lesion in the petrous area as well as enhancement (supposed lesion) on the cranial nerve. We will be consulting with a radiation provider next week.

Unfortunately this news has left me with a three day weekend and the internet ... which is a bad combo. There seems to be very little regarding lesions in this area and I'm looking to those here for any knowledge or experience you have had. I admit to having stalked this website since the initial diagnosis and have been comforted and impressed with the information pro­vided here, but have never posted.

Please let me know if there is any info or knowledge you have on this specific addition to my family's journey with myeloma.

My appreciation to all of you, whether you are fighting yourself, fighting alongside someone you love, or fighting this disease as your career.

[NStewart]

Re: Nerve lesion in the cranial area

by NStewart on Tue May 26, 2015 1:28 pm

Eeee1979 -

I can't give you any information about what you are asking, but I wanted you to know that you have been heard.

As you know, extramedullary myeloma can be quite aggressive. Your brother's doctors were right on target to immediately order an MRI of his head. Unfortunately, I think that you will all have to wait until he sees the radiologist this week to learn more about what is going on and what it might mean.

I'm sending your brother and all of your family love to continue to support your brother as he goes through this latest episode of living with myeloma.

Nancy in Phila