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General questions and discussion about multiple myeloma (i.e., symptoms, lab results, news, etc.) If unsure where to post, use this discussion area.

Confusion / chemo brain

by friends friend on Wed Dec 04, 2013 1:27 pm

My friend is very confused with multiple myeloma. Some days are better than others.

Does that get better with time. Will the confusion leave?

friends friend

Re: Confusion / chemo brain

by StandingTall on Wed Dec 04, 2013 5:18 pm

You are referring to what is popularly termed as "chemo brain". I noticed myself there was a season where I was a little hazy with things, and thought more concretely than abstract than usual. So it was a little strange. I've only been in treatment for 4 months and seemed to get a handle on it, but every story is different.

StandingTall
Who do you know with myeloma?: Me! yay!!
When were you/they diagnosed?: Sept. 2013
Age at diagnosis: 39

Re: Confusion / chemo brain

by LibbyC on Wed Dec 04, 2013 7:29 pm

Hi Friends,

Chemo brain will certainly give some confusion. It used to slow me down, thought processes, speech, except when I was on dex. Then I was like a blowie in a beer bottle going from one thing to the next. :D

I think that being newly diagnosed can also create a little confusion, particularly if the patient has to start treatment straight away. Imagine if you had had nothing to do with babies and suddenly you are in hospital with a baby in your arms and expected to look after it. I think you might be a little confused.

LibbyC
Name: LibbyC
Who do you know with myeloma?: myself
When were you/they diagnosed?: 2009
Age at diagnosis: 43

Re: Confusion / chemo brain

by morrow1022 on Thu Dec 05, 2013 2:51 pm

There are times that I feel like my brain is an etch a sketch and its been shaken. I can be in the middle of a thought and it just poof disappears from my brain.

morrow1022

Re: Confusion / chemo brain

by courtneypierce on Thu Dec 05, 2013 6:22 pm

I feel like the poster child for chemo brain. When I first started treatments in March 2011, my brain cells were a total bunch of mash. I could not complete a sentence most of the time without losing my train of thought.

While preparing for my stem cell transplant in May of 2011, I was relieved to see there on the wall at M D Anderson the definition of chemo brain. What a relief to see that I was not LOSING my mind permanently.

It has taken the 2 years since my transplant to feel like I am back to normal. What a delight to be able to remember things. :D

courtneypierce


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