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chromosome abnormality
my husband was dx with multiple myeloma in March, 2009. he was dx with stage 3 high-risk multiple myeloma. he was given 2-3 years. all his problems started in Nov. 2008 why so long for the dx and he wants to know ( i think this is wrong) is the prognosis of 2-3 years from the time of dx or from when it all started? his sct was this past sept. he is doing very well on the maintenance drug thalidomide.
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kmiller
Re: chromosome abnormality
Dr. William Bensinger from the Fred Hutchinson Cancer Research Center said:
"The diagnosis of myeloma is not infrequently missed since often the symptoms may come on slowly.
Without more specifics about your husband's symptoms and staging studies I am not in a position to confirm the 2-3 year prognosis your husband was given.
The time reference point is usually from the date of diagnosis; not when symptoms appear."
"The diagnosis of myeloma is not infrequently missed since often the symptoms may come on slowly.
Without more specifics about your husband's symptoms and staging studies I am not in a position to confirm the 2-3 year prognosis your husband was given.
The time reference point is usually from the date of diagnosis; not when symptoms appear."
Re: chromosome abnormality
kmiller,
I first experienced symptoms of multiple myeloma three years before my diagnosis. Here are some of the reasons for the delay.
1: I was 42 years old when I first experienced symptoms. The average age of a person diagnosed with multiple myeloma is 70.
2: The symptoms mimicked arthritis which is more common for someone my age.
3: I have non-secretory multiple myeloma which meant there was no spike in my M proteins which could be detected by a blood test.
4: My rheumetologist prescribed Humira, a TNF blocker which may have slowed down the progression of the disease or put it into remission for a while. The bone pain, fractures, etc... subsided for a period of twenty months.
The good news is that the treatment I have received has been effective.
I first experienced symptoms of multiple myeloma three years before my diagnosis. Here are some of the reasons for the delay.
1: I was 42 years old when I first experienced symptoms. The average age of a person diagnosed with multiple myeloma is 70.
2: The symptoms mimicked arthritis which is more common for someone my age.
3: I have non-secretory multiple myeloma which meant there was no spike in my M proteins which could be detected by a blood test.
4: My rheumetologist prescribed Humira, a TNF blocker which may have slowed down the progression of the disease or put it into remission for a while. The bone pain, fractures, etc... subsided for a period of twenty months.
The good news is that the treatment I have received has been effective.
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Matt - Name: Matt Linden
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: April 2009
- Age at diagnosis: 44
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