The Myeloma Beacon

Independent, up-to-date news and information for the multiple myeloma community.
Home page Deutsche Artikel Artículos Españoles

Forums

Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Chemo-induced peripheral neuropathy - solutions?

by Lin516 on Sat Feb 15, 2014 1:21 pm

I am having neuropathy in my feet which can only be measured on the Scoville Scale.

What has anyone tried either OTC or Rx to treat that?

Thanks!

Lin516
Name: Lin
Who do you know with myeloma?: Myself
When were you/they diagnosed?: 04/09/2013
Age at diagnosis: 57

Re: Chemo-induced peripheral neuropathy - solutions?

by Sylvia B. on Sat Feb 15, 2014 4:08 pm

Dear Lin,

I don't know if this is at all helpful to you. I did three rounds of chemo in the fall and one of
the three drug regime I took was Velcade. I developed quite painful neuropathy and my doctor took me off the Velcade for round 4 of chemo. (That was in Nov.) Since then, the neuro. has
gradually decreased to a very manageable level. I did take Gabapentin (prescription) that really helped me.

Sylvia B.

Sylvia B.

Re: Chemo-induced peripheral neuropathy - solutions?

by mikeb on Sun Feb 16, 2014 1:07 pm

Lin, sorry to hear about your neuropathy pain. My son is really into hot chili peppers, so I recognized the Scoville Scale immediately. It's one thing to have that kind of pain in your mouth when you can blame yourself because of what you ate, but it's a whole different thing if you get it in your feet, when you're just minding your own business taking chemo.

Like Sylvia B, I too have had some trouble with peripheral neuropathy due to Velcade. Lyrica, which is often prescribed for diabetes patents with neuropathy problems, has helped me a lot. Other things that can help are antioxidants like Alphalipoic Acid and L Carnitine. Also there's a study that showed that massaging your extremities with cocoa butter cream can help as well. I use all of these, but seem to get the most relief from Lyrica.

Good luck!

mikeb
Name: mikeb
Who do you know with myeloma?: self
When were you/they diagnosed?: 2009 (MGUS at that time)
Age at diagnosis: 55

Re: Chemo-induced peripheral neuropathy - solutions?

by Lin516 on Tue May 20, 2014 5:10 pm

I am off chemo; but have painful neuropathy in my feet. It is difficult to go exercise after working with my feet feeling like I've walked on hot coals.

I have Bence-Jones kappa light chain myeloma. I have codeine for neuralgia and myalgia. I have had to use ibuprofen and Excedrin to help with my foot pain.

It is my understanding I should not be taking ibuprofen. I don't know about Tylenol. I am supposed to be on ASA to that fits.

What can I take?

I have a lotion that works some; but not totally.

Anybody else?

- - - - - - -

Moderator's note: Excedrin's active ingredients, in its basic ("Extra Strength") form, are: 250 mg aspirin, 250 mg acetaminophen (paracetamol, Tylenol), and 65 mg caffeine.

Lin516
Name: Lin
Who do you know with myeloma?: Myself
When were you/they diagnosed?: 04/09/2013
Age at diagnosis: 57

Re: Chemo-induced peripheral neuropathy - solutions?

by Multibilly on Tue May 20, 2014 7:21 pm


Multibilly
Name: Multibilly
Who do you know with myeloma?: Me
When were you/they diagnosed?: Smoldering, Nov, 2012


Return to Treatments & Side Effects

cron