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Cesium Chloride
Anybody trying this therapy? My Alma is convinced that she must stay the course with it even tho it's clear to me that she is failing. I am trying to get her to try Pomalyst, but she just gets mad and says I'm not supporting her and that more chemo will finish her off. I guess I looking for advice on whether to continue supporting her choice to keep using the Cesium, or to try to convince her to try another treatment. Her white count is at about 1.5, according to her, and she says she doesn't think her immune system can handle another drug.
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royjulius - Who do you know with myeloma?: My girlfriend of 10 years, Alma
- When were you/they diagnosed?: About 5 years ago
- Age at diagnosis: 57
Re: Cesium Chloride
http://www.cancer.org/treatment/treatmentsandsideeffects/complementaryandalternativemedicine/herbsvitaminsandminerals/cesium-chloride
I hope the above link works. I'm not very accomplished at the computer.
I have heard of cesium chloride, but I just don't believe it is a suitable alternative to the many tried and true treatments available for multiple myeloma.
I hope the above link works. I'm not very accomplished at the computer.
I have heard of cesium chloride, but I just don't believe it is a suitable alternative to the many tried and true treatments available for multiple myeloma.
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Denise H
Re: Cesium Chloride
Your body self regulates its pH. Please be cautious. This pretty much sums up this drug: http://cesium-chloride.cancertreatment.net/
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: Cesium Chloride
I cannot imagine how difficult it must be for you to see someone you love do this to herself when there are so many new drugs for myeloma, that while not providing a cure, are proving to be highly effective and providing many months to years of high quality time for many with myeloma. I have had several relatives who are suspicious of mainstream anything, especially medicine, and latch onto esoteric treatments for the ailments. I never could understand their irrational thinking and beliefs, ignoring any evidence that was counter to them. It is very rare I hear about anybody dying from the new treatments for myeloma, but it is not hard to find examples of what happens if the myeloma progression is not stopped. I wish I could offer some advice to help persuade you GF to try the new novel therapy treatments, but the only thing I can offer is my example, they worked for me and I am remission enjoying spending the time I have with my GF. I hope you will be able to with yours as well.
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Eric Hofacket - Name: Eric H
- When were you/they diagnosed?: 01 April 2011
- Age at diagnosis: 44
Re: Cesium Chloride
Thank you all! I am going to show this thread to her. I have been all over the net and I can't find one example of this helping anybody. I can, however, find tons of info and posts from people that have been helped by the current drugs available.
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royjulius - Who do you know with myeloma?: My girlfriend of 10 years, Alma
- When were you/they diagnosed?: About 5 years ago
- Age at diagnosis: 57
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: Cesium Chloride
I showed her the Don Wright thread a few days ago and she said "Well, his numbers were better than mine, I don't think it will work that well for me." The problem is that she thinks she is so far gone that more chemo will finish her off. I honestly don't know if that's what will happen. I wish I could hear from someone that had super low numbers that got helped by Pom. I think more knowledge would help. We're both going to meet with her doctor soon, and I will ask him some questions that I probably should have been asking long ago.
She spends a lot of time on the Cancer Tutor website. So far I have read a lot of claims on there about how well some of the "alternative" treatments work, but I have yet to find evidence in a forum post by anyone claiming that they've been helped. I don't know about you all, but if I found a magic bullet for cancer on the internet I would be shouting about it from the rooftops.
She spends a lot of time on the Cancer Tutor website. So far I have read a lot of claims on there about how well some of the "alternative" treatments work, but I have yet to find evidence in a forum post by anyone claiming that they've been helped. I don't know about you all, but if I found a magic bullet for cancer on the internet I would be shouting about it from the rooftops.
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royjulius - Who do you know with myeloma?: My girlfriend of 10 years, Alma
- When were you/they diagnosed?: About 5 years ago
- Age at diagnosis: 57
Re: Cesium Chloride
roy--
I was looking at your introductory post and see that your sig other has refused treatment for the past two years. That and your posts about her now taking cesium chloride are very troubling. I am the wife of a six year multiple myeloma patient, and we have faced many low points; at times his treatments have had to be suspended due to various poor blood labs and infections, but he has stayed the course. At one point, we thought our options were pretty much exhausted, but in the last few years there have been some new options, both in the form of new drugs and new combinations of existing drug therapies. We are currently enjoying his remission. We know he will relapse at some point, but we will keep up the good fight. He has not done Pom yet, but just came off a rigorous rev/vel/dex regimen. It was no picnic, but he feels it was worth it.
Since your Alma says she knows her current white count, does that mean that she is consulting with a hematologist/oncologist currently? Perhaps you could accompany her to an appointment to support her and express your concerns, and find out what treatments might be tolerated by her.
My heart goes out to both of you.
I was looking at your introductory post and see that your sig other has refused treatment for the past two years. That and your posts about her now taking cesium chloride are very troubling. I am the wife of a six year multiple myeloma patient, and we have faced many low points; at times his treatments have had to be suspended due to various poor blood labs and infections, but he has stayed the course. At one point, we thought our options were pretty much exhausted, but in the last few years there have been some new options, both in the form of new drugs and new combinations of existing drug therapies. We are currently enjoying his remission. We know he will relapse at some point, but we will keep up the good fight. He has not done Pom yet, but just came off a rigorous rev/vel/dex regimen. It was no picnic, but he feels it was worth it.
Since your Alma says she knows her current white count, does that mean that she is consulting with a hematologist/oncologist currently? Perhaps you could accompany her to an appointment to support her and express your concerns, and find out what treatments might be tolerated by her.
My heart goes out to both of you.
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Denise H
Re: Cesium Chloride
Thank you Denise. She does have an oncologist and she does get regular lab work done. She did do Revl. and Velcade and I saw significant improvement with each drug. At diagnosis she could barely get into my Chevy Tahoe, and after some Revlimid she was driving herself to town and doing her own grocery shopping again. I can't explain why she balks at trying Pom, but as you can see by my many posts on here, I am working on convincing her to do so. I can't thank you all enough for your timely responses. I will have all weekend to discuss this with her.
Also, Denise, I do plan to attend her next visit with her Dr., thanks for the good suggestion and I should have done it long ago.
Also, Denise, I do plan to attend her next visit with her Dr., thanks for the good suggestion and I should have done it long ago.
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royjulius - Who do you know with myeloma?: My girlfriend of 10 years, Alma
- When were you/they diagnosed?: About 5 years ago
- Age at diagnosis: 57
Re: Cesium Chloride
Hello Roy,
I’m more of a forum reader than a poster, but it seems that your partner Alma is convinced that she’s too far gone for Pomalyst. My husband was in extremely bad shape before he started Pomalyst three months ago. His prior treatment was not working, and it took some time for his docs to process that it wasn’t working at all.
He seemed to be on a rapidly accelerating downward slope. His doctors were clearly alarmed. They prescribed Pomalyst and Velcade (sub-q). He was very fatigued the first cycle, and he needed a transfusion. But I suspect the anemia was more from the disease than the chemo.
He’s felt better every cycle, and his M-protein is now below 0.5 and still declining. He took Revlimid a few years ago. It worked, but the side effects were bad. Pomalyst is not bad at all—and this is with Velcade (4x per 28-day cycle and a lower than normal dose). The fatigue that first 6 weeks or so was bad, but it’s improved markedly. There’s occasional slight dizziness upon standing, too.
I would encourage your partner Alma to try a few cycles. Of the many things my husband has taken through the years, the Pomalyst has the mildest side effect profile. It seems to work, too. Three months ago it was hard to get from the house to the car. We went to a museum, lunch, and shopping downtown last weekend. No problems, and almost no resting.
Thanks,
SN
I’m more of a forum reader than a poster, but it seems that your partner Alma is convinced that she’s too far gone for Pomalyst. My husband was in extremely bad shape before he started Pomalyst three months ago. His prior treatment was not working, and it took some time for his docs to process that it wasn’t working at all.
He seemed to be on a rapidly accelerating downward slope. His doctors were clearly alarmed. They prescribed Pomalyst and Velcade (sub-q). He was very fatigued the first cycle, and he needed a transfusion. But I suspect the anemia was more from the disease than the chemo.
He’s felt better every cycle, and his M-protein is now below 0.5 and still declining. He took Revlimid a few years ago. It worked, but the side effects were bad. Pomalyst is not bad at all—and this is with Velcade (4x per 28-day cycle and a lower than normal dose). The fatigue that first 6 weeks or so was bad, but it’s improved markedly. There’s occasional slight dizziness upon standing, too.
I would encourage your partner Alma to try a few cycles. Of the many things my husband has taken through the years, the Pomalyst has the mildest side effect profile. It seems to work, too. Three months ago it was hard to get from the house to the car. We went to a museum, lunch, and shopping downtown last weekend. No problems, and almost no resting.
Thanks,
SN
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