Blood noses in march 2010
Chest and bone pain in October 2010
Tumour comes thru sternum in feb 2011
Hospital 2 months , radiotherapy blah blah blah
Revlimid trial march 2011 onwards
Stem cell work in July 2011... In storage till 2021
Rib, back and bone pain now...injections with no success
No praying or god like saviours for me....he gave me this and now the god botherers want to tell me that he can take it away!!! How cruels that?????
Waiting game he commenced but medical will fix this...hospital nurses and the experts, no deity or fictional book characters for me.
Forums
Re: ~*~Can you please share your story~*~
In July 2012, my husband had stem cell transplant for multiple myeloma, that was diagnosed
June 2011. His 100th day will be November 7th. His only problem is that he has pain between his shoulder blades. He fell back in April & crushed is L4 in his vertebra & it was
repaired. Due to this, an MRI has been done but results have not been received. Has
anyone with multiple myeloma had pain in the same area & what was done.
June 2011. His 100th day will be November 7th. His only problem is that he has pain between his shoulder blades. He fell back in April & crushed is L4 in his vertebra & it was
repaired. Due to this, an MRI has been done but results have not been received. Has
anyone with multiple myeloma had pain in the same area & what was done.
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Helper01
Re: ~*~Can you please share your story~*~
No symptoms, I was reupping my life insurance when a high protein sent me to my general Doctor. Quite the shocker, that was July 2009, ASCT in Feb 2010 and 2 years of Rev 10mg maintance, still clean the gods are smiling on me! And they do smile for all of us!
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Mike b
Re: ~*~Can you please share your story~*~
hi everyone, thanks again for all support.. my dan is back in hospital, been a week now 
i'm picking all your brains, his gone in with severe pain around his kidney area, mainly the left side. his had an ultra sound which showed up nothing wrong, still waiting for ct scan, oramorph ever 2 hours for the pain, along with various other pain killers. had a tens machine which helped for a while? the pain is an 11 on pain scale. has anyone else experiance this?? he did fractue his pelvis 3 weeks ago, but that seems ok now... i'm so worried, and really upsets me seeing him in so much pain... doc's don't know wot it is ???
i'm picking all your brains, his gone in with severe pain around his kidney area, mainly the left side. his had an ultra sound which showed up nothing wrong, still waiting for ct scan, oramorph ever 2 hours for the pain, along with various other pain killers. had a tens machine which helped for a while? the pain is an 11 on pain scale. has anyone else experiance this?? he did fractue his pelvis 3 weeks ago, but that seems ok now... i'm so worried, and really upsets me seeing him in so much pain... doc's don't know wot it is ???
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wanda and dan - Name: wanda and dan
- Who do you know with myeloma?: partner dan
- When were you/they diagnosed?: 41
- Age at diagnosis: 41
Re: ~*~Can you please share your story~*~
Hi Wanda, I am really sorry to hear about the terrible pain that your husband has, and I hope that he can get some relief from that soon. Is the thalidomide program working against his myeloma? i sure hope so. Maybe some others will post who have had the same sort of pain in the kidneys. Best wishes to both of you!
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Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: ~*~Can you please share your story~*~
Wanda and Dan, shortly after I was diagnosed I developed severe pain in the lower upper back and it was due to a crushed nerve root from the myeloma and vertebral compression; given his recent trauma, I suggest that they look at that as a possibility as neurogenic pain is usually the most severe. Radiation for 4 days followed by 10 days of bed rest lead to resolution of the pain in my case.
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bond 007
Re: ~*~Can you please share your story~*~
hi nancy and bond. thansk for the reply, nancy, we don't know if there is a response to the thlid yet dan see's his consultant friday sixith nov, not sure if we will find out something then,,, bond,,, it seems your right about the nerve thing, ty... dan came out thursday nite, pain is a little better and on new meds now for constipation from the morphine..xx
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wanda and dan - Name: wanda and dan
- Who do you know with myeloma?: partner dan
- When were you/they diagnosed?: 41
- Age at diagnosis: 41
Re: ~*~Can you please share your story~*~
My mom was taken to the hospital a couple of weeks ago after a month of bad headaches but no other symptoms at all. She was immediately diagnosed with kidney failure and spent 10 days in the hospital for kidney failure. She was given a kidney biopsy and her nephrologist was surprised to learn that the test came back showing signs of multiple myeloma. She had a full body x ray that confirmed that she had damage to her skull but no other damage to any other part of her skeleton. She is starting pheresis and chemo next week and is on dialysis as well. A lot to happen in a couple of weeks! This is all new to all of us and we are learning all about a disease we had never heard of before. My mom is 60 years old next week and in good health her whole life.
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Tracy Hansen