I have been diagnosed with smoldering myeloma 6 weeks ago.
At the start of my journey last July, I have been complaining of leg and arm weakness. Had all the neurological tests done and everything came back negative. I also have an issue with my pelvis area. If I clean the bathroom, wash the floors, walk too much, shop for extended period of time, I get this tightening and throbbing in my lower back area. Once I lay down for a few minutes it goes away.
Besides my enlarged, geographic tongue (which has affected my speech and eating) I feel fine.
Can the bone x-ray (no lesions) change over a 6 week period? I have been trying to take Aleve but after day 2 it has not helped.
Moderator's Note: This posting originally was made to the forum discussion "MGUS and weakness in legs". However, we thought it would be better if it started a thread of its own.
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Re: Can the results of a bone x-ray change within 6 weeks?
Hello,
An enlarged tongue is a classic symptom of amyloidosis, another variation of plasma cell dyscracia. Have you had a fat-pad aspirate to rule out amyloidosis?
Even a negative fat pad doesn't completely rule it out, but if you have symptoms then there are other biopsies that can diagnose amyloidosis.
http://www.mayoclinic.org/diseases-conditions/amyloidosis/basics/symptoms/con-20024354
Best,
Jhorner
An enlarged tongue is a classic symptom of amyloidosis, another variation of plasma cell dyscracia. Have you had a fat-pad aspirate to rule out amyloidosis?
Even a negative fat pad doesn't completely rule it out, but if you have symptoms then there are other biopsies that can diagnose amyloidosis.
http://www.mayoclinic.org/diseases-conditions/amyloidosis/basics/symptoms/con-20024354
Best,
Jhorner
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jhorner - Name: Magpie
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: 2013
- Age at diagnosis: 49
Re: Can the results of a bone x-ray change within 6 weeks?
It's unlikely for bone imaging to change in 6 weeks, but not impossible.
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Dr. Jason Valent - Name: Jason Valent, M.D.
Beacon Medical Advisor
3 posts
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