Hello Group,
I've recently been diagnosed with stage 2 multiple myeloma. The cancer doc diagnosed me 3 4 weeks ago on a Friday and wanted me to start chemo the following Tuesday. I thought that was a little too soon as I wanted to research about what it is that I have and the alternative options, if any. I've had many tests, bone marrow showed 13.5 %abnormal cells, clean MRI, clean PET scan, clean full skeletal bone density scan. My lower back hurts from wedged vertebrae and old age, I'm 53?
So the doc wants me to do RVD chemo then do a stem cell transfer at the Moffitt Center in Tampa Florida. I have a friend who has bone and breast cancer. She was stage 4, in pain and stayed in bed. She didn't want to do chemo. She found an alternative approach called BX Protocol from the Delta Institute. She is now in fantastic shape. She had to change her diet, uses a hyperbaric chamber and administers to herself a syringe of the BX every 2 weeks.
I spoke to Dr Smith who heads up the Delta Institute for a phone consultation and it seems their approach is to target only the abnormal cancer cells and kill them while preventing them to multiply and changing the cell structure back to normal. I don't totally understand it but I see the results in my friend. I need to make a decision this week on which treatment to move forward with.
I would appreciate any advice you can give me. Thank you in advance very much!!
Forums
Re: BX Protocol (Delta Institute)?
As you may have gathered from reading posts on this forum, most of us have chosen to stay with the traditional medical treatment of myeloma. Some have decided to opt for an alternative route and some have blended the 2. One of the things that you should thoroughly investigate is the success rate of the Delta Institute protocol in people with blood cancers. Blood cancers are very different from solid tumors such as breast and bone cancers. Also, look up the research that has been published for this protocol and who has done the research. If it is only the Delta Institute with no research that supports their findings from other researchers, then I would be somewhat wary about following their protocol as my only treatment.
The current treatment drugs for myeloma aren't like the traditional chemo drugs that we are so used to hearing about in the treatment of solid tumors. These drugs are targeted therapies that attack the cancer cell by disrupting their processes. Yes, they do have side effects, but no where near as bad as traditional chemo. Most of us are living very active lives even though we are in active treatment - working, playing, raising families, traveling, etc. It is not a given that you have to have a stem cell transplant after initial induction treatment. That is always the decision of the person with myeloma to decide. More and more people are opting to not do the transplant because they have had such good responses with the treatment drugs.
Please do some thorough research into the Delta Institute beyond what you see in your friend and do some thorough research into myeloma and the current treatment protocols before you make your decision. Read some of the abstracts of current research results that have been posted here on the Beacon from the recent American Society of Hematology (ASH) conference. Try to make as informed a decision as you can, rather than an emotional one, about how you want to proceed. Get a second opinion from a myeloma specialist at Moffit or Mayo in Florida.
I wish you well with whatever you decide to do for treatment. We are all here for you as you travel this new journey in life.
Nancy in Phila
The current treatment drugs for myeloma aren't like the traditional chemo drugs that we are so used to hearing about in the treatment of solid tumors. These drugs are targeted therapies that attack the cancer cell by disrupting their processes. Yes, they do have side effects, but no where near as bad as traditional chemo. Most of us are living very active lives even though we are in active treatment - working, playing, raising families, traveling, etc. It is not a given that you have to have a stem cell transplant after initial induction treatment. That is always the decision of the person with myeloma to decide. More and more people are opting to not do the transplant because they have had such good responses with the treatment drugs.
Please do some thorough research into the Delta Institute beyond what you see in your friend and do some thorough research into myeloma and the current treatment protocols before you make your decision. Read some of the abstracts of current research results that have been posted here on the Beacon from the recent American Society of Hematology (ASH) conference. Try to make as informed a decision as you can, rather than an emotional one, about how you want to proceed. Get a second opinion from a myeloma specialist at Moffit or Mayo in Florida.
I wish you well with whatever you decide to do for treatment. We are all here for you as you travel this new journey in life.
Nancy in Phila
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NStewart - Name: Nancy Stewart
- Who do you know with myeloma?: self
- When were you/they diagnosed?: 3/08
- Age at diagnosis: 60
Re: BX Protocol (Delta Institute)?
Hi there,
You might also want to do some research about smoldering multiple myeloma and how this fits into the disease spectrum and monitoring/treatment protocols for the same. All the best to you.
You might also want to do some research about smoldering multiple myeloma and how this fits into the disease spectrum and monitoring/treatment protocols for the same. All the best to you.
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DanaH - Who do you know with myeloma?: Myself, SMM as of 1/2012
- When were you/they diagnosed?: 1/2012
- Age at diagnosis: 54
Re: BX Protocol (Delta Institute)?
Thank you for the replies. It seems there is not a lot of info on BX protocol or the Delta institute on this site or the other myeloma sites. if it is so successful wouldn't you think people would be talking about it? Or does the mainstream traditional approach have such a huge user rate?
Re: BX Protocol (Delta Institute)?
Hi Reelfaith,
You will find folks on this site that do pursue alternative treatments and they may chime in here. I have never heard of BX, but that that doesn't mean anything. My only advice regarding BX is to do your homework and due diligence with other multiple myeloma patients that have undergone BX treatment if you do decide to pursue this approach.
Within the confines of "traditional" treatment of multiple myeloma, it is perfectly reasonable to ask whether you should pursue a "transplant" in addition to drug treatment. Many on this site have opted not to pursue transplants and to instead rely solely on the drug treatment of multiple myeloma.
You can find a good discussion on this subject at https://myelomabeacon.org/forum/looking-for-feedback-on-recommended-first-round-treatment-t1502.html Some multiple myeloma specialists just automatically recommend a transplant to nearly all of their multiple myeloma patients, others will no longer consider it and others are somewhere in the middle or elsewhere on the continuum. It's good to talk to a variety of different multiple myeloma specialists with different opinions before selecting a particular course of treatment.
You will find folks on this site that do pursue alternative treatments and they may chime in here. I have never heard of BX, but that that doesn't mean anything. My only advice regarding BX is to do your homework and due diligence with other multiple myeloma patients that have undergone BX treatment if you do decide to pursue this approach.
Within the confines of "traditional" treatment of multiple myeloma, it is perfectly reasonable to ask whether you should pursue a "transplant" in addition to drug treatment. Many on this site have opted not to pursue transplants and to instead rely solely on the drug treatment of multiple myeloma.
You can find a good discussion on this subject at https://myelomabeacon.org/forum/looking-for-feedback-on-recommended-first-round-treatment-t1502.html Some multiple myeloma specialists just automatically recommend a transplant to nearly all of their multiple myeloma patients, others will no longer consider it and others are somewhere in the middle or elsewhere on the continuum. It's good to talk to a variety of different multiple myeloma specialists with different opinions before selecting a particular course of treatment.
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: BX Protocol (Delta Institute)?
I know that BX works well as I used it before they decided to move out of the U.S. You can't get BX in the states, but you can get it out of Panama where the main offices are.
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TenderTG
Re: BX Protocol (Delta Institute)?
Hello,
My father was diagnosed with stage 4 lung cancer, and I was looking at the BX protocol to see if it would help him. I've spoken with Dr. Smith, but I want to talk to someone who has taken it.
Is there anyone here who can help me?
My father was diagnosed with stage 4 lung cancer, and I was looking at the BX protocol to see if it would help him. I've spoken with Dr. Smith, but I want to talk to someone who has taken it.
Is there anyone here who can help me?
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AntonioY
Re: BX Protocol (Delta Institute)?
I am looking for more information about the Delta Institute and BX Protocol. I have a someone that has cancer and we are looking into this as well. It sounds awesome for people with cancer, but we would like to hear from someone that has worked with this protocol. Anyone out there?
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GBK
Re: BX Protocol (Delta Institute)?
Reelfaith,
Did you begin the BX protocol? Is it working? A family member of mine is considering it, and we are reluctant based upon the instructions to wire transfer $ to the Cayman Islands. Any info would be appreciated.
Did you begin the BX protocol? Is it working? A family member of mine is considering it, and we are reluctant based upon the instructions to wire transfer $ to the Cayman Islands. Any info would be appreciated.
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anotherround
Re: BX Protocol (Delta Institute)?
My Mom has been diagnosed with both ovarian and uterine cancer. She had a full hysterectomy and chemo. The chemo was completely ineffective and within 3 weeks a bigger tumor was found than the original one that was removed. The chemo took an incredible toll on her body and she decided that she did not want to have a second surgery and more chemo which was recommended.
As anyone would be, we were very wary about the wire transfer, but after much communication and research we went through with it. My mother is in her 3rd week of the program. It is very intense; she follows a very strict diet and must track her symptoms and vital signs daily. She is in contact with the doctors and her case manager daily. It is a year long program with a year of "maintenance."
We are hoping that this is the answer to our prayers. It is my opinion that the reason that alternative medicine is not promoted more boils down to money. Alternative medicine is not regulated and does not make money.
I wish everyone much success in whatever path they choose.
As anyone would be, we were very wary about the wire transfer, but after much communication and research we went through with it. My mother is in her 3rd week of the program. It is very intense; she follows a very strict diet and must track her symptoms and vital signs daily. She is in contact with the doctors and her case manager daily. It is a year long program with a year of "maintenance."
We are hoping that this is the answer to our prayers. It is my opinion that the reason that alternative medicine is not promoted more boils down to money. Alternative medicine is not regulated and does not make money.
I wish everyone much success in whatever path they choose.
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KCC
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