[ninja performance]

Re: Bone Marrow Aspiration

by ninja performance on Thu Jan 05, 2012 12:10 pm

rumnting wrote:
> Diane,
> If you ever have another born marrow biopsy, tell them that you want to be
> sedated. There is no reason to have to feel pain for this procedure.
> You will be glad that you went to Mayo. It is so organized and professional
> that it really inspires confidence.

My two BMB so far were done without any sedation. And let me tell ya, it HURT both times. OWEEE dangit.

The BMB I am getting prior to SCT for pre testing I requested sedation since I have since heard people get sedated for it.

Normally it takes 5-7 days sometimes 10 for results. Depends on the lab/hospital.

-Chris

[diane]

Re: Bone Marrow Aspiration

by diane on Thu Jan 05, 2012 4:03 pm

Hi, yes this office isn't very professional. When I was waiting to be called back for the aspiration, the front desk staff said so that everyone waiting could hear, 'Diane, you are the bone marrow biopsy at 8:30 - right?' The only reason I went back was because the Mayo said it would be nice to have all info regardless of the diagnosis. I asked them if they could give me the results over the phone and they said that is not their policy.

Such as world of difference - my oldest son has had over 30 craniofacial surgeries and I've never had any of his surgeons/doctors office staff mention his name, diagnosis, or procedure. Most send lab or x-ray results via internet, but also request a confirmation that we received it. Diane

[ninja performance]

Re: Bone Marrow Aspiration

by ninja performance on Thu Jan 05, 2012 4:11 pm

diane wrote:
> Hi, yes this office isn't very professional. When I was waiting to be
> called back for the aspiration, the front desk staff said so that everyone
> waiting could hear, 'Diane, you are the bone marrow biopsy at 8:30 -
> right?' The only reason I went back was because the Mayo said it would be
> nice to have all info regardless of the diagnosis. I asked them if they
> could give me the results over the phone and they said that is not their
> policy.
>
> Such as world of difference - my oldest son has had over 30 craniofacial
> surgeries and I've never had any of his surgeons/doctors office staff
> mention his name, diagnosis, or procedure. Most send lab or x-ray results
> via internet, but also request a confirmation that we received it. Diane

You are right, that is no ones business and should not have been announced to the room.

-Chris

[diane]

Re: Bone Marrow Aspiration

by diane on Fri Jan 13, 2012 3:19 pm

Hi - here is an update on my bone marrow aspiration. I have MGUS and no myeloma or smoldering myleoma in the marrow. Will be checked every few months to learn if there is a spike. Also, learned during this process (from another doctor) that I am showing markers for Hashimoto's Syndrome and my thryoid is non-functioning. I have been on thryoid Rxs for 15 years. I was going to cancel the Mayo hemotologist team meeting, but the endocronologist said it is important to learn the association of having an autoimmune disease and MGUS. I wonder if having an autoimmune disease increases the odds of MGUS advancing to multiple myeloma since I assume something is going on with the immune system. She also said that Hashimoto's increases the risk of other autoimmunes such as diabetes and lupus. Diane