I had two-three places with damage to the bones, but no fracture. In the beginning, they told me to be very careful. But after a year the signal seems to be that the risk is now minimal or completely gone.
Best regards lev
Forums
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Lev - Name: Lev
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: June 2014
- Age at diagnosis: 57
Re: Have you had bone damage from multiple myeloma?
I have two small lesions on my skull, the largest is 0.5 cm. No other problems. I was dignosed one year ago. I was started on Zometa about eight months ago with vitamin D and calcium supplements.
Good luck.
Good luck.
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Ted Kan - Who do you know with myeloma?: Self
- When were you/they diagnosed?: December 2014
- Age at diagnosis: 75
Re: Have you had bone damage from multiple myeloma?
Hi Kristine,
I had several compression fractures of vertebrae, mostly in the low back, at the time of dx. I did take the bone building medication Aredia (pamidronate) at intervals spaced over one month, then two months, and three months, for three years. Aredia is used for bone strengthening, and Zometa is an alternative med that is also used. My fractures have partially healed after six years and from the treatments taken. The fact that my cancer was put into remission also meant that further bone damage was not occurring.
I was really nervous about getting injured again, and am cautious about lifting heavy objects or doing exercises that might be hazardous too! For example, I used to be a jogger, but now am a walker! I used to 'down hill' ski, but now am trying out snowshoes! Sometimes we need to be able to make a change in our activities.
Good luck to you and your mother and I hope that she does really well with her treatments.
I had several compression fractures of vertebrae, mostly in the low back, at the time of dx. I did take the bone building medication Aredia (pamidronate) at intervals spaced over one month, then two months, and three months, for three years. Aredia is used for bone strengthening, and Zometa is an alternative med that is also used. My fractures have partially healed after six years and from the treatments taken. The fact that my cancer was put into remission also meant that further bone damage was not occurring.
I was really nervous about getting injured again, and am cautious about lifting heavy objects or doing exercises that might be hazardous too! For example, I used to be a jogger, but now am a walker! I used to 'down hill' ski, but now am trying out snowshoes! Sometimes we need to be able to make a change in our activities.
Good luck to you and your mother and I hope that she does really well with her treatments.
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Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: Have you had bone damage from multiple myeloma?
Hi Kristine,
Did the doctor not explain to your mom why she has to use the neck collar (krage)? May I ask what the CT result shows? Is there any fracture perhaps?
I'm sure your mom is being treated by a specialist at St Olav Hospital. If she is receiving IV medicine every 4 weeks (once a month), that's the Zometa to strengthen her bones.
I have had stiffness and pain in the neck, and an MRI showed a lesion in my neck. After blood test was taken, I was diagnosed with multiple myeloma, but I did not go with a neck collar.
Tell your mom to be careful to avoid bone fractures.
Did the doctor not explain to your mom why she has to use the neck collar (krage)? May I ask what the CT result shows? Is there any fracture perhaps?
I'm sure your mom is being treated by a specialist at St Olav Hospital. If she is receiving IV medicine every 4 weeks (once a month), that's the Zometa to strengthen her bones.
I have had stiffness and pain in the neck, and an MRI showed a lesion in my neck. After blood test was taken, I was diagnosed with multiple myeloma, but I did not go with a neck collar.
Tell your mom to be careful to avoid bone fractures.
Re: Have you had bone damage from multiple myeloma?
My husband was diagnosed in November 2014 with a giant bone lesion in his hip and too many to count small lesions throughout his upper body, including his skull. One year later, following RVD induction plus bone strengthening trial (monthly he gets either zometa or a drug they are testing), auto stem cell transplant in March and RVD consolidation therapy, things look much better! His big lesion has healed significantly and there are fewer lesions overall.
At the start of treatment, my husband was put on crutches and told not to bear any weight on his bad hip. He now lifts weights at the gym daily, and as he is also an avid cyclist, was back on his bike all summer, including two rides > 100 miles.
I hope your mom's recovery follows a similar path with good bone repair! I hope the neck brace, like my husband's crutches, become a foggy memory soon enough.
At the start of treatment, my husband was put on crutches and told not to bear any weight on his bad hip. He now lifts weights at the gym daily, and as he is also an avid cyclist, was back on his bike all summer, including two rides > 100 miles.
I hope your mom's recovery follows a similar path with good bone repair! I hope the neck brace, like my husband's crutches, become a foggy memory soon enough.
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EF11 - Who do you know with myeloma?: husband
- When were you/they diagnosed?: November 2014
- Age at diagnosis: 43
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