[Multibilly]

Re: Blood work shows elevated monoclonal protein

by Multibilly on Thu Oct 22, 2015 4:05 pm

Socal guy,

I am so sorry to hear about your diagnosis. I am sure it did hit you like a freight train and most of us can relate.

WM is somewhat like multiple myeloma and there is some overlap with a few of the treatments used with multiple myeloma. In any case, you are always welcome here and you may find this to be a pretty good place to discuss many of your various issues and challenges.

BTW, if you haven't found this site yet, these are the Mayo's diagnostic and treatment guidelines for WM:

http://nebula.wsimg.com/22ce67ff555ac9dbe66843c682f456b9?AccessKeyId=A0994494BBBCBE4A0363&disposition=0&alloworigin=1

Lastly, if you are a need of a second opinion in the so cal area (something I would encourage at some point), feel free to private message me.

Take care.

[mikeb]

Re: Blood work shows elevated monoclonal protein

by mikeb on Fri Oct 23, 2015 10:31 am

Hi SoCalGuy,
Sorry to hear about the Waldenstrom's Macroglobulinemia diagnosis. I know hearing that you have any type of cancer is shocking news, and takes some time to adjust to. Even if your doctor recommends a wait and watch approach. Sometimes that can be tougher psychologically than just going ahead and treating it.

I just wanted to let you know that a dear friend of mine, one of my college professors, was diagnosed with WM a couple of years ago. He went through treatment with Rituxan and has been in remission since then, doing well. I hope one positive anecdote helps your frame of mind a bit.

And Multibilly's suggestion of a second opinion is something well worth considering.

Best wishes,
Mike

[socalguy91387]

Re: Blood work shows elevated monoclonal protein

by socalguy91387 on Fri Oct 23, 2015 1:22 pm

Multibilly,

Thanks for the Mayo link I'm going to check it out. I'm thinking I'll wait until my next blood work up in 4 weeks before seeking a second opinion but if'/when I do I'll be sure to PM you. Thanks again!

[socalguy91387]

Re: Blood work shows elevated monoclonal protein

by socalguy91387 on Fri Oct 23, 2015 1:23 pm

Thanks, Mike, that's very uplifting to hear. I'm just now looking at some of the drugs used to treat WM so I'll be looking into Rituxan.