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Betty, MGUS in Arkansas

by bwest on Tue Feb 21, 2017 8:47 pm

Hi everyone!

My name is Betty, and I am a 57-year-old, married grandmother newly diagnosed with MGUS. I have only had the initial appointment with a hematologist and have a skeletal survey scheduled for March 13.

I have a history of mesangial proliferative glomerulonephritis :cry: from years ago, which was acute in nature and the symptoms resolved without intervention, but I have to admit that when I was told that I had an M-spike and in the same lab result saw that my albumin was outside the normal range, I fully expected a diagnosis of monoclonal gammopathy of renal significance (MGRS), so I took in a 24-hour urine specimen to the initial appointment. (It's always nice to come bearing gifts) ;)

While I guess most folks don't want to hear that they have MGUS, I wanted to dance naked on the table with that diagnosis! Hopefully, I'm not being overly optimistic, but my renal function was good from the lab work the hematologist ran.

Meanwhile I'm plowing through the information here to try to educate myself. At this point, I don't even understand my lab results, but I'm a quick study, so I'll keep reading the forums. I am grateful to have found this resource!

I have also been diagnosed with iron deficiency anemia and suffer from numbness in my right leg and arm. Oh yeah, an intradural arachnid cyst was found during a screening MRI. Lots going on. Maybe "they" can jack my eyeballs up and roll a new chassis underneath! ;)

I have a follow-up with the hematologist after the skeletal scan so in the meantime I'm headed over to the MGUS forum to search and read and try to come up to speed on terms and tests.

Wish me luck!

bwest

Re: Betty, MGUS in Arkansas

by Dippydoo on Thu Feb 23, 2017 3:21 pm

Hi Betty!

Sorry you have to be here. And you are right, most folks don't want to be diagnosed with MGUS. Like you, after my bone marrow biopsy tomorrow, if I get a diagnosis of MGUS, I too will be dancing on the table!

Take care, best wishes!

Dippydoo
Name: DippyDoo
Who do you know with myeloma?: Myself MGUS
When were you/they diagnosed?: 2/9/2017
Age at diagnosis: 49


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