My dad just completed his 4 cycles of VDT. His lab results after the chemo as follow:-
- Protein - 63g/L (65-82g/L)
- Albumin - normal
- IgA - <0.150g/L (0.8-4g/L)
- IgG - normal
- IgM - 0.23g/L (0.8-2g/L)
- Kappa - 1.03g/L (1.4-3.8g/L)
- Lambda - <0.30g/L (0.9-2.4g/L)
Just wondering if anyone takes a treatment break (free from myeloma treatment drugs) even though complete remission has not been achieved yet? If so, pls share your experience and for how long.
Many thanks!
Forums
Re: anyone takes a treatment break after chemo?
Hi Phoebe,
I made the decision after 5 chemo cycles to have a break. Things are going well. I am hoping to prove to myself and conventional medicine that natural supplements and a combination of non chemical treatments actually work.
I am now taking shark cartilage 3 x daily given rectally. In a study taken in a lab setting the shark cartilage proved 100% effective.
Also taking MMS (miracle mineral solution).
Won't go into detail but there are plenty of non toxic ways to heal without the side effects of poison.
My advice? Doctors will use scare tactics to keep patients on the hard core drugs, but it is important to be empowered and find out what path is right for you.
Good luck, Dave
I made the decision after 5 chemo cycles to have a break. Things are going well. I am hoping to prove to myself and conventional medicine that natural supplements and a combination of non chemical treatments actually work.
I am now taking shark cartilage 3 x daily given rectally. In a study taken in a lab setting the shark cartilage proved 100% effective.
Also taking MMS (miracle mineral solution).
Won't go into detail but there are plenty of non toxic ways to heal without the side effects of poison.
My advice? Doctors will use scare tactics to keep patients on the hard core drugs, but it is important to be empowered and find out what path is right for you.
Good luck, Dave
-
Dave - Name: Dave
- When were you/they diagnosed?: September 2012
- Age at diagnosis: 38
Re: anyone takes a treatment break after chemo?
Dave wrote:
> Hi Phoebe,
>
> I am now taking shark cartilage 3 x daily given rectally. In a study taken
> in a lab setting the shark cartilage proved 100% effective.
> Also taking MMS (miracle mineral solution).
>
This MMS product? Yikes.
http://en.wikipedia.org/wiki/Miracle_Mineral_Supplement
> Hi Phoebe,
>
> I am now taking shark cartilage 3 x daily given rectally. In a study taken
> in a lab setting the shark cartilage proved 100% effective.
> Also taking MMS (miracle mineral solution).
>
This MMS product? Yikes.
http://en.wikipedia.org/wiki/Miracle_Mineral_Supplement
-
Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: anyone takes a treatment break after chemo?
Hi Dave, Glad to know you are doing well. Five cycles of chemo (it was Velcade, right? plus dex) is not inconsiderable. I had only four cycles of that to put me close to a remission. I went through a stem cell transplant and a year of maintenance chemo after that too....but the cycles of Velcade were remarkably efficient. It could be that the 'novel agents' are working wonderfully well. It's hard to know about your 'unconventional' treatments, unless there were to be some scientific documentation and trials of it, but it seems to work for you.
-
Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: anyone takes a treatment break after chemo?
Hi Again, I followed Multbilly's link to MMS and after reading that I wouldn't want to ingest it.
-
Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: anyone takes a treatment break after chemo?
Yikes!! You are happy to ingest chemotherapy but afraid of something like MMS? Yikes! 
Nancy, i put no faith in 'scientific trials' when they are all funded by drug companies who are only interested in making money. You cannot patent a natural substance, so therefore drug companies will never make money from them -hence no money would ever be spent conducting scientific trials - there is just no money in it. Drug companies put profit before people's wellbeing.
Have you read Ty Bollinger's book 'Cancer: Think Outside The Box' yet?
Multibilly: I wouldn't waste my time reading Wikipedia. It's the most biased and 'policed' form of information on the web.
Time for more MMS and my shark cartilage enema
Cheers, big Dave!
Nancy, i put no faith in 'scientific trials' when they are all funded by drug companies who are only interested in making money. You cannot patent a natural substance, so therefore drug companies will never make money from them -hence no money would ever be spent conducting scientific trials - there is just no money in it. Drug companies put profit before people's wellbeing.
Have you read Ty Bollinger's book 'Cancer: Think Outside The Box' yet?
Multibilly: I wouldn't waste my time reading Wikipedia. It's the most biased and 'policed' form of information on the web.
Time for more MMS and my shark cartilage enema
Cheers, big Dave!
-
Dave - Name: Dave
- When were you/they diagnosed?: September 2012
- Age at diagnosis: 38
Re: anyone takes a treatment break after chemo?
Hi Dave, i just reflect on the fact that I have had a remission for almost three years, the last two of which were 'drug free'! With myeloma, relapses tend to be the norm I guess, and that may happen with my health also, but I certainly credit the medical treatments I have had with my survival this far. Also do have a good QOL, so can't complain really! I think because I sailed right through the MGUS, and SMM phases unknowingly, I didn't worry too much about taking the chemotherapy which ultimately saved my life! Yes, it is a world of big drug companies and all, but that was the channel that got those new drugs, which are specific to myeloma/amyloidosis, to my cancer centre!
-
Nancy Shamanna - Name: Nancy Shamanna
- Who do you know with myeloma?: Self and others too
- When were you/they diagnosed?: July 2009
Re: anyone takes a treatment break after chemo?
Dave wrote:
> Yikes!! You are happy to ingest chemotherapy but afraid of something like
> MMS? Yikes!
>
Let's be clear that I'm smoldering right now, not on any chemo and I'm investigating various solutions (both natural and chemo) to either hold me at bay or to be clear on what my options are if I should progress to a symptomatic stage.
Having been on this site for a few months now, I think it is fair to say that I haven't seen any detractors of natural approaches post on this site and I've found that most folks that are doing conventional treatment are truly interested and respectful of those going down the natural path.
I'm fortunate to just be smoldering right now and I'm on a quest to try to find the best way to deal with this disease. My current philosophy is to combat it naturally given my early stage...and I hope to smolder for the rest of my life based on that approach. But I also believe that there is a tipping point where one has no choice but to also pursue chemo and/or an SCT route, and I'm glad I have those options available to me should that time come.
> Yikes!! You are happy to ingest chemotherapy but afraid of something like
> MMS? Yikes!
>
Let's be clear that I'm smoldering right now, not on any chemo and I'm investigating various solutions (both natural and chemo) to either hold me at bay or to be clear on what my options are if I should progress to a symptomatic stage.
Having been on this site for a few months now, I think it is fair to say that I haven't seen any detractors of natural approaches post on this site and I've found that most folks that are doing conventional treatment are truly interested and respectful of those going down the natural path.
I'm fortunate to just be smoldering right now and I'm on a quest to try to find the best way to deal with this disease. My current philosophy is to combat it naturally given my early stage...and I hope to smolder for the rest of my life based on that approach. But I also believe that there is a tipping point where one has no choice but to also pursue chemo and/or an SCT route, and I'm glad I have those options available to me should that time come.
-
Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: anyone takes a treatment break after chemo?
I think Multibilly's post is spot on. Many of us did not have the time to pursue natural approaches to halt the progression of myeloma. Many of us were confronted with urgent and life threatening medical situations and had to seek treatment immediately (i.e. renal failure, collapsed vertebrae, etc.). In my case, while smoldering, I had a pulmonary embolism caused my my rapidly progressing plasma cells which almost killed me. My hemoglobin dropped in a matter of weeks to almost transfusion level. I respect the natural approach but that wasn't going to cut it for me and many on this forum. I was lucky to get a slot in a cutting edge clinical trial and I believe it saved my life.
-
terryl1 - Name: Terry
- Who do you know with myeloma?: self
- When were you/they diagnosed?: August 10, 2011
- Age at diagnosis: 49
Re: anyone takes a treatment break after chemo?
Dave wrote:
Hello Dave
How is it going with the MMS post chemo treatments you're taking?
Also are you taking MMS1 or MMS2, and do you feel better now that you've stopped the chemo?
Last thing - would you recommend MMS to post chemo patients?
Thank you.
M.
I made the decision after 5 chemo cycles to have a break. Things are going well. I am hoping to prove to myself and conventional medicine that natural supplements and a combination of non chemical treatments actually work.
Hello Dave
How is it going with the MMS post chemo treatments you're taking?
Also are you taking MMS1 or MMS2, and do you feel better now that you've stopped the chemo?
Last thing - would you recommend MMS to post chemo patients?
Thank you.
M.
11 posts
• Page 1 of 2 • 1, 2