[bhagya]

Re: Cataract surgery during or after myeloma treatment?

by bhagya on Tue Aug 08, 2017 1:51 am

Thank you for the reply. Very new to myeloma and this forum has so many lovely people who are ready to share their experiences. Reading from all your experiences, I am now tension free. I thought my mother may go blind, imagined how she has to struggle and what not! Very much relieved now.

My mother had mild cold yesterday. I do not know what and all I have done. Steam inhalation, Ayurveda medicines, Eucalyptus oils. She says I am getting anxious more than needed. She isn't worried about her myeloma but more worried about me getting this hyper conscious and anxious.
Need to calm down!

[dianaiad]

Re: Cataract surgery during or after myeloma treatment?

by dianaiad on Tue Aug 08, 2017 9:40 am

Yes, you need to take a deep breath and just .... be.

I'm looking at a second stem cell transplant in the next two or three months. I'm not going to tell you that I'm all that mellow about the whole thing, because of course I'm not. My first experience wasn't wonderful.

However, it did give me four years of a really, really good remission.

So now I'm the one dealing with treatment and the transplant and all the physical stuff, but it's my caregivers who are going nuts. They are all trying so hard to figure out how to take care of me at the same time they are dealing with seventieth wedding anniversaries, weddings (two of 'em), babies (one), birthdays (a whole bunch, including mine), community theater plays in which two of 'em play leads (the villains, but who cares? great songs!), and all the other life things that happen to people and cause delight. I told them all to chill out. Grandkids and weddings and birthdays and incredible anniversaries are the part of life that makes life worth sticking around for. So is the simple pleasure of having a loved one just be there, today.

Your mom is right. She will handle the myeloma, whatever comes with it, with your help. How­ever, you will be a lot more help, and have a great deal more pleasure in both your life and your mom, if you just let things be what they are, and take care of yourself at least as much as you take care of her. Yes, it is an anxious time and you will have to be a very strong advocate for her, but take your mom's advice.

Bless you both.

[bhagya]

Re: Cataract surgery during or after myeloma treatment?

by bhagya on Wed Aug 09, 2017 1:47 am

Thanks for those words Diana. My mother is all fine today. Recovered from cold but still had a round of steam inhalation because I insisted. I forced her last December to have a pneumo­coccal vaccination and she said 'These are for people like you who live in cities and spend time in front of computers the whole day. A machine in front of another. We live in villages and work in fields. I don't need it.' She finally had the first round 3 months before she was diagnosed and I feel so good that I had her vaccinated.

We are vegetarians, My mother worked full day in farm cooking for around 25 people in a day. Healthy life style (sleep at 8:00 pm sharp and wake up by 4:30), no smoke, no drinks, no packaged food. She always grew her own food. Never caught a fever all these years. no high blood pressure, no diabetes, and there comes myeloma. I still feel it has something to do with the pesticides or something used in the farms. We do not have any family history of cancer. Not at least for the last 4 generations!

[chadsnow]

Re: Cataract surgery during or after myeloma treatment?

by chadsnow on Thu Aug 10, 2017 8:37 pm

I was diagnosed in May 2016 and underwent bilateral cataract surgery in July 2016 right in the middle of my Velcade, Revlimid, and dexamethasone induction therapy. Never had a problem. My cataracts were pre-existing from old detached retinas.

[bhagya]

Re: Cataract surgery during or after myeloma treatment?

by bhagya on Fri Aug 11, 2017 4:11 am

Thanks for the reply Chad. That's nice to know. Hopefully my mother shouldn't have issues and should get the surgery done successfully. She is on cyclophosphamide, bortezomib (Velcade), and dexamethasone (CyBorD). She has a pending piles operation as well.

[bhagya]

Re: Cataract surgery during or after myeloma treatment?

by bhagya on Mon Jun 25, 2018 1:09 am

Update:

My mother had her cataract surgery along with her hemorrhoid surgery, and both were very successful. She didn't face any issues.

[Nisha123]

Re: Cataract surgery during or after myeloma treatment?

by Nisha123 on Thu Jun 28, 2018 12:07 pm

So encouraging to hear, Bhagya.

Hope your mum is doing well.