It's great to be on a site with such knowledgeable and informative members
I am wondering if anyone can help?I had a bmb on the 3rd Sept last year which showed a plasma cell dyscrasia of under 10%, I have an abnormal flc ratio:
My flc’s in sept: free kappa of 9.67, free lambda of 371.39 & a ratio of 0.026 (locally)
My flc’s in oct: free kappa of 9.9, free lambda of 286 & ratio of 0.03 (NAC)
and a positive Bence Jones urine. There was also an incidental finding of Amyloid tissue which has muddied the waters even more. A trip down to the National Amyloidosis Centre in London confirmed my organs are clear and I did not have AL Amyloidosis . NAC told me SMM and my haem consultant told me MGUS and to make things even more confusing for me, NAC say there is a possibility that I will develop Al Amyloidosis so I am watching and waiting for signs of multiple myeloma/AL Amy and indeed there is a possibility I could have both!? And then I read yesterday that people with myeloma can develop amyloidosis (approx 20%) but not the other way around. So it occurred to me that with the above results there is still a possibility that I have amyloidosis alone? Am I right in saying this?
Apparently I had no monoclonal band detected…what does this mean? Is it something to do with my disease being non-secretery? I have values for Ig’s as well from the NAC which are all apparently normal. I seem to be bombarding you with questions, but would be great to have your opinions on this. Many thanks.
Best wishes
Kay
