The Myeloma Beacon

Independent, up-to-date news and information for the multiple myeloma community.
Home page Deutsche Artikel Artículos Españoles

Forums

Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: Alternative therapy / treatments for multiple myeloma

by Tracy J on Tue Jan 19, 2016 8:47 am

A note of caution here: there is some preliminary evidence that green tea interferes with the effectiveness of bortezomib (Velcade).

http://www.bloodjournal.org/content/113/23/5695?sso-checked=true


Essiac tea has extremely weak data, mostly because no peer reviewed trials have ever been successfully conducted. There is some evidence that some of the individual components have anti-inflammatory and anti-cancer activity. Importantly, one of the components also has PRO-cancer activity. It is unknown if the individual components are present in sufficient quantities in Essiac tea to have any effect, positive or negative.

http://www.cancer.gov/about-cancer/treatment/cam/hp/essiac-pdq#section/_52

My husband recalls researching Essiac tea a year ago, and remembers finding a report that the Canadian nurse who developed it had faked her data, thereby discrediting her original claims. I can't find that report on a cursory search right now. But maybe I'll have time to look more closely later.

Tracy J
Name: Tracy Jalbuena
Who do you know with myeloma?: Me
When were you/they diagnosed?: 2014
Age at diagnosis: 42

Re: Alternative therapy / treatments for multiple myeloma

by Tracy J on Tue Jan 19, 2016 8:55 am

I also found an important report that curcumin interferes with the effectiveness of cyclophosphamide (Cytoxan).

http://www.ncbi.nlm.nih.gov/pubmed/12097302

I think this one is so important because both curcumin and cyclophosphamide are so common among myeloma patients!

Tracy J
Name: Tracy Jalbuena
Who do you know with myeloma?: Me
When were you/they diagnosed?: 2014
Age at diagnosis: 42

Re: Alternative therapy / treatments for multiple myeloma

by Sheldon on Thu Apr 07, 2016 6:49 pm

Anyone have significant successes utilizing alternative therapies, i.e., IP6, curcumin, etc., vs. standard medical protocol?

Sheldon

Re: Alternative therapy / treatments for multiple myeloma

by myub40 on Mon Oct 10, 2016 3:34 pm

mymom (Keylly) wrote:
As my mom, who was diagnosed with t(4;14) + 1q in 2008, will now (January 2016) start treatment, I'm looking into alternative remedies. She's been on various supple­ments and we're also working on diet. Just made our first bone broth (femur bone and back bone) and are trying things like Essiac Tea.

Hi Kelly,

I am new to this forum. How is your mom doing?

Thank you,
rehema.

myub40
Name: Rehema

Re: Alternative therapy / treatments for multiple myeloma

by Aclinkboca on Tue Oct 18, 2016 11:28 pm

I have been very fortunate that my insurance pays for me to get massages twice a week. I have been receiving the massages since December when it all started up with me. I would highly recommend a massage specialist thatt knows about cancer and myeloma to help everyone's body. I found found the massage removes the chemo faster. The massage helps to make sure I do not have complications from the Revlimid too.

I find that when I get a massage the day after my chemo, my recuperation is so much faster that week. One week my therapist could not come see me because she had an illness. That week I was not able to get over the chemo until the weekend, whereas with the massage, I usually am able to get back to being active on Thursday.

AC

Aclinkboca
Name: AC
Who do you know with myeloma?: Myself
When were you/they diagnosed?: Dec 2015
Age at diagnosis: 46

Re: Alternative therapy / treatments for multiple myeloma

by MMFeb16,15 on Sat Oct 22, 2016 3:25 pm

Dear forum friends:

My multiple myeloma experience is posted several times. The day I was staged multiple myeloma stage II IgG kappa, my wife took charge of my diet. Some of the things were added, reading on website being good or bad for cancer, like sugar is bad, turmeric is good.

Here is my diet plan or restrictions:

  • No sugar
  • Low sodium
  • No white carbs - rice, wheat bread
  • Quinoa and millet are ok
  • More fruits and veggies
  • Occasional fish
  • Three times a week two eggs each time
  • No alcohol
  • Lots of fruits
  • No GMO
  • Lots of vegetables, preferably grown in our backyards
  • ABC juice daily (apple, beet, and carrot - one each)
  • Baking soda, lime juice, and honey concoction four times a day
  • Turmeric in all veg and soup
  • In addition, a mug of turmeric, milk, honey and black pepper concoction in the morning and before going to bed.
This was during treatment (Revlimid plus dexamethasone twelve cycles) period and now off treatment period. Off treatment since April 24, 2016.

Thank you.

MMFeb16,15
Who do you know with myeloma?: Self
When were you/they diagnosed?: February 16, 2015
Age at diagnosis: 66

Re: Alternative therapy / treatments for multiple myeloma

by abhi0707 on Thu Oct 27, 2016 6:19 pm

Hi,

My uncle has been recently diagnosed with multiple myeloma (bone marrow). He is also a heart patient with pacemaker installed. There is a sign of water in heart and lungs. Doctors suggested to go for chemo, but there is a high risk whether his body will resist or not?

Can anyone let me know of any alternative or naturopathy method of medications considering his present body condition?

abhi0707

Previous

Return to Treatments & Side Effects